← Return to Pacemaker recipients: Looking for support from others
DiscussionPacemaker recipients: Looking for support from others
Heart Rhythm Conditions | Last Active: Nov 4 5:49am | Replies (490)Comment receiving replies
Replies to "I like the idea! I was scheduled to have a pacemaker,defibrillator put in about two weeks..."
@joehohn
This would bother me to! With the type and model you can look it up on their website. I have a Boston Scientific and my EP gave me what I was getting. I am on my 3rd and each time I get an upgrated model along with the Laitude home monitoring system.
Do you have access to another EP? You can always go to Mayo or Cleveland to have it done and then have a local EP or cardiologist be your local specialist. Probably would need to travel once a year to the institution that put it in. But many people have ICD/Pacemakers and move and then have it monitored locally.
When I first got mine I lived over 3 hours from Mayo. They asked (Mayo) to have a local caridologist who was willing to work with Mayo and provide local cardiologist monitoring and access as well as coming to Mayo Clinic on on going basis.
Mayo also put me on a system called Latitude. It can monitor your ICD/Pacemaker and send reports to your EP and Pace Clinic. How I had it set up was Mayo would get report and send ot my local caridologist as well.
In 2015 move to Ponte Vedra and now 25 minutes away from Mayo so the need for an additional local cardiologist went away. It is too bad your EP or cardiologist is NOT providing the information you requested as that is exactly what they should be doing for you or any patient.