Truth about Total Knee Replacements

Posted by rickraleigh @rickraleigh, Jul 31, 2021

Your new knee will never feel as good as your original old one

For most people it takes a full year to get most of the benefits of the surgery

Many people experience a clicking sound when walking for years or forever after the surgery

You should do physical therapy for a year after the surgery to get the best range of motion results even though your therapist will discharge you after several months.

There are no studies which will tell you what activities you can do after TKR. Is doubles tennis OK? Golf? What you read online varies. There are no clear answers.

Many surgeons are finished with you after the surgery. If you have issues with the surgery's aftermath, they may not be that helpful.

The scar is big, and no amount of ointment (vitamin E, etc.) will substantially reduce it.

Good news: If you had bad knee problems before the surgery your knee will feel a lot better after the surgery.

Interested in more discussions like this? Go to the Joint Replacements Support Group.

Sorry I was answering another message and I’m on the wrong message. I don’t know what happened.

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@skshapiro

It seems that very few TKR problems mention knees buckling. My knees have buckled on me since I was a kid. At 70 I thought I better do something about this because I am going to fall and really hurt myself so I had TKR done Feb of 23. A few weeks after it my right knee buckled and I fell. I told the surgeon and he had no answers except that its healing. All told my knees have buckled on me five times since my surgery and in April I fractured my femur. That surgeon got into a cumbersome brace but it did keep me upright and I have not buckled since may. My femur is healing nicely. My right leg is feeling stronger and I am back at the gym and swimming. My rom is probably 100 but I am petrified to put all my weight on my right leg i.e. going up and esp down stairs, Luckily we have no stairs where I live. I would like to hear from others who have TKR with a history of knees buckling.

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If your knee is buckling it’s unstable. Different things can cause that. If you have fallen that much and have that much issue with your knee buckling I would get a 2nd opinion.
My tibial plate was loose on my first knee. The second knee the spacer was the wrong size and my knee hyper extends and my knee cap slides out of place. Surgeons who did the work will not find “anything wrong” with their work. Talk with your PT and see if y’all can figure out what you might could do to make it stronger and get a second opinion from a different doctor.

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I'm a 65-year old male who's 26 and 25 months post bilateral TKRs. My (right) knee is far worse now than it ever was pre-surgery. The difference isn't even close, and I greatly regret having chosen surgery. It's not a mischaracterization to say the surgery has caused great harm to my body and left me with permanent, life-altering impairment, much as an auto accident or war injury might affect someone. My other (left) knee isn't as bad, but it too is still worse than pre-surgery.

The worst problem by far with my right knee is its significant loss of flexion. This loss is approximately 20 degrees, so it can now only bend to 95 degrees, at which point it comes to a sudden, extremely painful, dead stop. This decrease in ROM makes doing many routine activities difficult or even impossible because of pain and simply not being able to bend the joint enough. These include putting on or taking off pants, socks, and shoes, going up or down stairs, getting into or out of a seated position, getting into or out from a car, bending over to pick up a fallen object from the floor, etc. Kneeling with thick neoprene knee pads is possible and acceptably comfortable, but getting down into a kneeling position is difficult. Getting up from the ground is MUCH more difficult and requires significant upper body strength to push up from the ground and grab a stationary object to get an assisting hand hold to pull up from.

Fortunately, the extension on both knees is excellent, 100%.

I attended all the in-home and outpatient physical therapy sessions my Anthem Blue Cross health insurance would cover, probably 36 visits in all, and performed the prescribed exercises at home regularly in the early months following surgery. To date, I've also attended numerous visits with the orthopedic surgeon who operated on both of my knees, and he and I have maintained good relations. I've also had appointments with several other orthopedic surgeons in order to get their second, third, and fourth opinions, but none of them has been able to confidently diagnose the underlying cause of my condition nor offer new ideas for possible treatment. They all trust my testimony and can feel the "dead stop" my knee comes to when manipulating it with their own hands. The operating surgeon says I doubtless have significant scarring and fibrosis as a direct result of surgery, but doesn't know how it can be addressed without attempting to remove the hardened soft tissue by surgery.

I'm not posting this to advise anyone from getting a TKR since I know many patients do indeed report very positive results. I'm simply doing so to report my OWN personal experience and situation and to advise due diligence being as well informed as possible before deciding to get surgery or not.

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@hsminc

This is a very pessimistic write up in my humble opinion. I am 81 years old. I had bilateral (sequential) total knee replacements in 2015. The right (done first) was much more painful than the left. I screamed when I walked 50 feet. I had some pain afterward cause of an irritated psoas muscle or nerve. That went away rapidly - maybe within the week at most (do not remember).
My knees feel totally normal - like my own. I have no pain or other issues. I do not ever kneel on them; do not have the need. Although I can easily run (my previous addiction), I do that only when I have to for some reason.
I also had a total hip and reverse shoulder. All feel like my normal parts. I totally forget about them. I never had a single physical therapy session except I met with a PT before they would release me.

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Wow! I’ve never heard such a positive review of bilateral knee and hip replacement outcomes. To say your new knees and hip feel totally normal. Please share the names of your surgeon(s).

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The same surgeon did all three surgeries:
Mark Pagnano MD
Mayo Clinic, Rochester

My shoulder is the same - no problems; no post surgery pain; no PT needed; feels totally normal 14 months later. (My pcp can not believe it.)
Sanchez Sotello
Mayo Clinic RST

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@jsimmons74

If your knee is buckling it’s unstable. Different things can cause that. If you have fallen that much and have that much issue with your knee buckling I would get a 2nd opinion.
My tibial plate was loose on my first knee. The second knee the spacer was the wrong size and my knee hyper extends and my knee cap slides out of place. Surgeons who did the work will not find “anything wrong” with their work. Talk with your PT and see if y’all can figure out what you might could do to make it stronger and get a second opinion from a different doctor.

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Two weeks ago I had my second opinion appointment and I was extremely disappointed. I actually printed responses from this website that described my issues and he didn't even look at it. He acted as if he knew all the issues all ready. He did not ask me any questions and seemed very reluctant to discuss a revision with no explanation as to why. I told my femur surgeon, who recommended him, my experience and she seemed baffled. I now have a second opinion with a nother doctor later this month. I guess I am writing this to vent my frustration with this whole TKR journey. Meanwhile since my femur is healing nicely I am getting stronger but that bend is still a b**tch.

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@oceanspruce

I'm a 65-year old male who's 26 and 25 months post bilateral TKRs. My (right) knee is far worse now than it ever was pre-surgery. The difference isn't even close, and I greatly regret having chosen surgery. It's not a mischaracterization to say the surgery has caused great harm to my body and left me with permanent, life-altering impairment, much as an auto accident or war injury might affect someone. My other (left) knee isn't as bad, but it too is still worse than pre-surgery.

The worst problem by far with my right knee is its significant loss of flexion. This loss is approximately 20 degrees, so it can now only bend to 95 degrees, at which point it comes to a sudden, extremely painful, dead stop. This decrease in ROM makes doing many routine activities difficult or even impossible because of pain and simply not being able to bend the joint enough. These include putting on or taking off pants, socks, and shoes, going up or down stairs, getting into or out of a seated position, getting into or out from a car, bending over to pick up a fallen object from the floor, etc. Kneeling with thick neoprene knee pads is possible and acceptably comfortable, but getting down into a kneeling position is difficult. Getting up from the ground is MUCH more difficult and requires significant upper body strength to push up from the ground and grab a stationary object to get an assisting hand hold to pull up from.

Fortunately, the extension on both knees is excellent, 100%.

I attended all the in-home and outpatient physical therapy sessions my Anthem Blue Cross health insurance would cover, probably 36 visits in all, and performed the prescribed exercises at home regularly in the early months following surgery. To date, I've also attended numerous visits with the orthopedic surgeon who operated on both of my knees, and he and I have maintained good relations. I've also had appointments with several other orthopedic surgeons in order to get their second, third, and fourth opinions, but none of them has been able to confidently diagnose the underlying cause of my condition nor offer new ideas for possible treatment. They all trust my testimony and can feel the "dead stop" my knee comes to when manipulating it with their own hands. The operating surgeon says I doubtless have significant scarring and fibrosis as a direct result of surgery, but doesn't know how it can be addressed without attempting to remove the hardened soft tissue by surgery.

I'm not posting this to advise anyone from getting a TKR since I know many patients do indeed report very positive results. I'm simply doing so to report my OWN personal experience and situation and to advise due diligence being as well informed as possible before deciding to get surgery or not.

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How far out are you from your replacements? I too was frustrated with the lack of flexion and how it severely was cutting down on my day to day activities. Your description of impact is very true, as I regretted having had mine done as well.
I did have a second opinion and he recommended the MUA ( manipulation under anesthesia), which my surgeon wasn’t a proponent of at first. I told him I needed a functional joint when he said he was happy if his pts got 90*!!! I had the MUA done at 11 weeks post-op. I’m now about 8 weeks out from the MUA.

So glad I did it. That wall you hit is a wall of scar tissue. I couldn’t break past that though I was religious about PT 3x/wk and all the exercises at home. My extension improved as well. Was 10* or more, now I can get to 0* with my stretching. Flexion up to +125*, making for a much more flexible knee.
Still recovering. Still need to ice and elevate. Still building up my strength.

Don’t think I will do knee #2 for a long while. Though it hurts, bone on bone… just like too much what it can do verses giving it all up for an artificial joint. The Drs certainly don’t go into that very much fo they?

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I just saw you said how far out. Whoops.

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@cathymw

I just saw you said how far out. Whoops.

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I'm too far out from surgery to have an MUA.

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I’d be finding someone who’d work on surgically removing the scar tissue. There’s got to be a way. That wall you’re hitting has to be scar tissue. You’re too young to settle.
Then have aggressive physical therapy, covered by good pain control ( discussed ahead of time w surgeon team) and an ice machine for at nighttime. I swear by my ice machine. It should be required after a TKA or MUA.

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