Hi y’all! I thought I would check to see how you’re doing. Have you experienced facial sores and if so, any suggestions for treating or curing them? It does seem odd that some of us Lanreotide users get them and others don’t. I have taken synthroid for 30 yrs at different dosage ya think that matters?
This week I received my 3rd (of 4) PRRT Lutathera infusions at City of Hope. So far I have experienced little to no side effects, aside from exhaustion, a few days of achiness and no appetite. There has never been nausea. The 5-8 hr day is mostly just boring. I am anxious to get the 4th infusion in December… then wait anxiously for results of CT or MRI to be able to report tumor shrinkage or better yet, “tumors disappeared”! Anyone afraid of PRRT i understand your reluctance, however I feel confident I made right decision for me. This choice has offered my good quality of life during this treatment avoiding the miserable side effects of Chemo or recuperation of long surgery. (Surgery sounds great, but we don’t have just cancer… we have NETS that can reappear almost everywhere in our body!). For me, I believe being a NETS patient means one treatment, then another type treatment when tumors grow larger; repeat &repeat.
I choose most not-invasive treatment offering best quality of every day!
That’s my 2cents…