I am now on Kevzara for 5 months after two years of being on prednisone and finally on July 1 ‘24I tapered off prednisone . 14 months ago my legs began to get weaker and weaker. Now standing from sitting position is very difficult as is climbing up and downs steps. Forget about getting on the floor to play with my 9 month old grandson .
My c reactive protein and sed rate are normal on Kevzara
My RA doctor prescribed tests as though I am starting over. Started with a physiatrist who is ordering x ray of all my painful areas. Neck shoulders knees and ankles It is assumed I have PMR under control. It could be and most probably is corticosteroid myopathy. It is so limiting. I must say I can walk and sit , the two activities I do most. I exercise and stretch every day.
I asked my RA doc about testing for cortisol numbers. She said no. I was surprised especially since in the month of August - Sept I lost 7 of the 20’lbs I gained I thought the reason was my adrenals kicked in If my tests come back negative I will assume I have Cory o steroid myopathy