I got sick in June 2022 the first time and once more in 2023. I already have ADHD, Depression and Anxiety but now things have gotten so bad I can't concentrate long enough, nor stand long enough to do any kind of work consistently.
My worst symptoms come and go and will last anywhere from 1 week to several months (and they seem to be getting worse with time, not better.) The symptoms are:
- Constant low fever (99.3~99.9)
- Exertion based fevers (over 100.2). Even just standing up can give me a fever.
- Excessive fatigue
- Severe brain fog (worse than pre-covid adhd brain fog)
- Hair loss
- Headache and increase in Migraines (I've had at least 20 since May, when i started keeping track)
- Shortness of breath
- Heat intolerance
- Stress intolerance
The accute symptoms are post-exertional, whether that's mental or physical. I have to lay down for the symptoms to lighten up. These symptoms started about 2 weeks after my first covid infection ended, which was itself very mild.
When these periods end I'm somewhat functional, except I still have fatigue, brain fog and memory trouble, near-constant low fever, and hair loss.
I lost my job in Feb 2023 primarily because I couldn't keep up anymore, and I can't handle the stress of job hunting for long enough to land one, and I don't know that I could keep it if I did.
I've had a million tests done to see what could be causing all this, (esp thyroid, since a lot of this sounds related) but my labs come back squeaky clean every time. I really don't know what to do. I wish everyone out there luck and wellness.
Hello Akamaki,
Firstly, I’m sorry I took so long to reply. I too am very ill with LC. so, I’ve been sleeping mostly since last CHAT on here.
Your story is so close to my story. Except I don’t get migraines but have several other additions to my symptoms but all the same way. I started in 2020 with Covid 1, a few symptoms stuck with me, 2/2021 Covid 2, then everything started to hit. Like you, mine gets worse over time, not better. I’m getting everybody’s story for my Drs and now I think SSDI as well. I filed in Feb this year. Just got 4 more envelopes requesting more medical info and employment (things I did and what I could do now). We all know that even a simple job of, I will say greeter at a store. I couldn’t stand or sit for that. I saw you also have heat intolerance, as do I terribly. I have my air on 24/7. Set now at 64. I will increase as high as 66, but that’s too warm
usually. I will actually sweat profusely, get dizzy and nauseous then vomit when warm. Office at Drs that keep it like 70 kill me. I have turned around and rescheduled for 1st appt next visit so I can get out quickly. It’s a terrible feeling.
I want to thank you for helping and I want to encourage others that are having Dr issues or others that don’t believe or understand, make a log of our stories. Show it. My Dr was actually interested. 🤗