← Return to Weaning off of prednisone & pain management

Discussion

Weaning off of prednisone & pain management

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:23am | Replies (156)

Comment receiving replies
@dadcue

Had I listened to the folks that promote dead slow I would still be on prednisone. They encouraged me to stay on Prednisone for the rest of my life rather than try a biologic. It was a dilemma for me because my rheumatologist was saying that taking Prednisone for the rest of my life would be a bad outcome. I'm glad I listened to my rheumatologist.

There are possible side effects from any biologic but I think being "totally terrified" is unwarranted. I haven't had any side effects from Actemra and it works well for me.

You won't know if Kevzara will work for you unless you try it. However, my rheumatologist said if I could maintain my Prednisone dose at 3 mg or less, a biologic might not be needed.

The side effects from Prednisone were real to me. The Prednisone side effects were not that easy to manage without additional medications. I had higher blood pressure, higher cholesterol levels. higher glucose levels and higher intraocular pressures to name just a few.

I was on 10 additional medications which were treating Prednisone side effects. All those medications also had possible side effects and added to the Prednisone side effects. Fortunately, I was able to discontinue all of those additional medications after I was able to taper off Prednisone.

I have been on Actemra for 5 years. The number of medical concerns I have are less compared to the 12 years I was on Prednisone. I wasn't so sure I would have lived 5 more years had a stayed on Prednisone.

It is a personal decision and I hope dead slow works for you.

Jump to this post


Replies to "Had I listened to the folks that promote dead slow I would still be on prednisone...."

Thank you so much for your reply! I appreciate your journey and I am so glad it worked out for you! As I am only on 2.5 mg and I can maintain that without feeling awful I am very hesitant to add yet another drug. You’re right at the higher doses it would be critical to consider other options. Prednisone is no joke and the side effects are awful. I want to be done with it. Having so many of the side effects from prednisone makes me Leary of any drugs at this point! But it is a double edged sword because I couldn’t walk without prednisone. Thank you again for your very thought out response. Much appreciated.