ED after prostatectomy? Any first hand experiences overcoming it?

Posted by robertmizek @robertmizek, Oct 3 11:55am

I originally had brachytherapy in 2020. I chose that so I could continue my active sex life with my wife. The cancer responded favorably and the good life continued for three more years. Unfortunately PCa came raging back and the only option was salvage prostatectomy so now I’m dealing with severe ED 8 months after surgery. Mild erections are possible without Viagra but require a lot of stimulation to get things going. Even that is a victory because I’m also on ADT. I guess I have a strong constitution.

My doctors have said that it takes at minimum of 12 months for the nerves to heal and that it’s more often 18-24 months. 😡

What do other POST SURGERY PCa survivors have to say on this? Anyone have good news?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Contact your urologist and request he get you a Trimix prescription. You will have to go into the office the first time in order to see how it is injected. It’s possible you could use one of the drugs in TriMix right now instead of going to all three drugs. Papaverine alone may work, see what the urologist recommends.

This will definitely enable you to get a good erection.

The only drawback is that you have to use a very thin needle and inject your penis with it. People I know that have used it say that it doesn’t hurt at all to do that and the results are really great. If you put too much in, it even gives you too long an erection. This is something the doctor would test when you go in, to figure out how much you need to inject.

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@jeffmarc

Contact your urologist and request he get you a Trimix prescription. You will have to go into the office the first time in order to see how it is injected. It’s possible you could use one of the drugs in TriMix right now instead of going to all three drugs. Papaverine alone may work, see what the urologist recommends.

This will definitely enable you to get a good erection.

The only drawback is that you have to use a very thin needle and inject your penis with it. People I know that have used it say that it doesn’t hurt at all to do that and the results are really great. If you put too much in, it even gives you too long an erection. This is something the doctor would test when you go in, to figure out how much you need to inject.

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I had a lot of pain with Trimix. I’m currently doing BiMix. with good results but it takes away spontaneity.

I guess I should’ve been more clear on this, but I am hopeful that the day comes when I’ll be able to get erections without injections and get some amount of nighttime erections like I used to before surgery.

Thanks for your comment Jeff.

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My surgery was Feb 2020. I was having no issues with ED prior to surgery. I had RALRP. No other treatments. Dr. gave me a prescription of Viagra to start taking. I took one pill with no results. My wife also got cancer shortly after. I have had zero stimulation and no drugs. It was probably about the 2 year mark I noticed some life down there. I have continued to have a partial during the night. Whatever they call that early morning erection. 6 months ago I went to Mayo urology. He gave me a prescription of Cialis. I took a couple of pills with no effect. Still no stimulation. About 2 weeks ago I woke from a vivid dream and had a full erection. My first one. It will be coming up on 5 years. Nothing since. So my case is almost 5 years with no stimulation and no self stimulation. My Mayo urologist had explained that I might not be able to after such a long period. You use it or lose it. I am 72. About a year and half ago I did start Testosterone cream. My T runs about 700. I have complete desire just no tools.

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My heart goes out to you for your wife’s diagnosis first of all and also for your continued struggle with ED.

One of my best friends who’s four years younger than me had total nerve sparing and expected full recovery of sexual function within 18 months. His care team took zero steps however to initiate any rehabilitation to stop atrophy and promote nerve regeneration. Three years post surgery his only remaining option is an implant. ED has been devastating to him personally and his marriage.

I’m 69 years old and only eight months post surgery and going to do everything I can to get my life back on track.

So far, I haven’t heard any encouraging news from any of my friends who have gone through RP and sure hope to hear something positive on this forum to give me encouragement to press on.

Good luck on your continued journey.

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You will probably be fine. I think these sites are more the men/women sharing issues. I have two friends at the gym both with prostate removal and neither have issues with ED. I think my outcome could have been different with stimulation. At this point, its not that big of a deal. But my point was its been almost 5 years and I had my first full erection and it took almost 2 years to get a partial. Not sure if things will work in a moment of passion but it does take awhile.

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@tuckerp

My surgery was Feb 2020. I was having no issues with ED prior to surgery. I had RALRP. No other treatments. Dr. gave me a prescription of Viagra to start taking. I took one pill with no results. My wife also got cancer shortly after. I have had zero stimulation and no drugs. It was probably about the 2 year mark I noticed some life down there. I have continued to have a partial during the night. Whatever they call that early morning erection. 6 months ago I went to Mayo urology. He gave me a prescription of Cialis. I took a couple of pills with no effect. Still no stimulation. About 2 weeks ago I woke from a vivid dream and had a full erection. My first one. It will be coming up on 5 years. Nothing since. So my case is almost 5 years with no stimulation and no self stimulation. My Mayo urologist had explained that I might not be able to after such a long period. You use it or lose it. I am 72. About a year and half ago I did start Testosterone cream. My T runs about 700. I have complete desire just no tools.

Jump to this post

Ask your doctor about Trimix. It’s an injection you give into the penis that gives you an erection. You don’t wanna wait too much longer, but it works for so many people it’s worth trying. There are different levels, so there are some drugs with only one or two ingredients and some with three like Trimix. Ask your urologist, you do have to go into the office to be shown how to give the injection and how much to give.

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@tuckerp

You will probably be fine. I think these sites are more the men/women sharing issues. I have two friends at the gym both with prostate removal and neither have issues with ED. I think my outcome could have been different with stimulation. At this point, its not that big of a deal. But my point was its been almost 5 years and I had my first full erection and it took almost 2 years to get a partial. Not sure if things will work in a moment of passion but it does take awhile.

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That’s some positive news I needed to hear! Thanks for posting that.

It's sad that we guys are often embarrassed to talk about something that’s an essential part of our lives and being a man. I’ve decided to be open about the matter hoping that my doing so will help someone else with their struggles.

My sexual health urologist rates erections on a scale of 0 to 10 with 6 being adequate for intercourse and 10 qualifying you for a job in the adult film industry. Before surgery I was a 7-8. With an injection I’m a 6 now. Without an injection I’m a 3 on a good day which is better than nothing but not all that useful. My goal is to be a 6 or more without an injection once the nerves heal and I’m done with ADT.

In the meantime I’m going to do my to use it however I can and not lose it!

Good luck to you and thanks for sharing.

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@jeffmarc

Ask your doctor about Trimix. It’s an injection you give into the penis that gives you an erection. You don’t wanna wait too much longer, but it works for so many people it’s worth trying. There are different levels, so there are some drugs with only one or two ingredients and some with three like Trimix. Ask your urologist, you do have to go into the office to be shown how to give the injection and how much to give.

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Jeff, see my previous response to you. I’m already doing injections and hoping that I can heal enough not to need them someday. Bob

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Well, while we are sharing, I'll just throw out there that it's not my treatment causing the ED. I will be 70 shortly, and it's been maybe 8 years with equipment failure. Rough at the beginning to accept but now it's all good. I have my memories, (at least for the time being, I do get forgetful at times lol ). this is not really helping the conversation but at least saying it's something if some are at least getting part way to their goals. Best to all.

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@robertmizek

Jeff, see my previous response to you. I’m already doing injections and hoping that I can heal enough not to need them someday. Bob

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I was replying to somebody else @tuckerp . If you don’t reply to them, they don’t get an email saying that there was a reply. They might’ve missed the comments I made to you which were almost the same.

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