Hello jc76
Thank you for your support on this topic.
Since I have a CRT, I would be interested a support group that includes my device.
About 80% of all CIEDs are pacemakers, either single or dual chambers devices. A further 10% are ICDs. The remaining 10% are CRTs. But the implantation of CRTs is increasing.
For someone new to this site, locating the pacemaker thread mentioned by Colleen is pretty difficult. I accidently stumbled across it myself. If we wish to offer support and shared experience to those who already have a device or to those who are perhaps scheduled to get one, accessing that information should be easy to find. A dedicated support group listing would take a lot of guessing and searching out of the mix.
Advice and shared experiences I received from others made my experience much less isolating. Knowing you are not alone is simply invaluable. That is the essence, indeed, the very definition of a support group.