Facial and lip sores from lanreotide injections for NETs?

Pavlina60, I also had scary hair loss beginning about a year after I started lanreotide injections. My dermatologist suggested using Rogaine for women, but it was messy and seemed to make my hair fall out faster.
I began taking 1000 mg of Biotin daily about 5 months ago, and my hair has stopped falling and is growing back.
I don’t know if the hair loss was related to the lanreotide, but the Biotin certainly is making a difference.
Good luck with your treatments!

Thank you, @roseflame!Thank you for the advice! I will start biotin! I also have elevated blood sugar (due to Lanreatide), but am not on any medications yet and taking bitter melon and watching carbs.
God bless! And keep fighting!🦓💜

Did you ever start taking the Biotin? If so, did it seem to help with the hair-loss? Would love to hear if that helpful.
Blessings!

Yes, I started Biotin ( 10K, once a day). My hair still falls off, but what is left is stronger, and a bit curly 🙂
My endocrinologist mentioned that Biotin interferes with thyroid results, and I just had blood work on 9/30. Will see how it affects thyroid hormones...

I have low thyroid function & take synthetic thyroid hormones. I'm curious to know how the Biotin affects the results, if you are willing to share your results when they come back.
Blessings!

I actually have ' secondary hyperparathyroidism"- high PTH due to low Vit.D ( I take 50K Vit.D3 once a week and the other days I take 2K), it is still summer and I have been going in the sun, so hopefully it will not be so bad.
But I will let you know what my endocrinologist thinks

Hi y’all! I thought I would check to see how you’re doing. Have you experienced facial sores and if so, any suggestions for treating or curing them? It does seem odd that some of us Lanreotide users get them and others don’t. I have taken synthroid for 30 yrs at different dosage ya think that matters?
This week I received my 3rd (of 4) PRRT Lutathera infusions at City of Hope. So far I have experienced little to no side effects, aside from exhaustion, a few days of achiness and no appetite. There has never been nausea. The 5-8 hr day is mostly just boring. I am anxious to get the 4th infusion in December… then wait anxiously for results of CT or MRI to be able to report tumor shrinkage or better yet, “tumors disappeared”! Anyone afraid of PRRT i understand your reluctance, however I feel confident I made right decision for me. This choice has offered my good quality of life during this treatment avoiding the miserable side effects of Chemo or recuperation of long surgery. (Surgery sounds great, but we don’t have just cancer… we have NETS that can reappear almost everywhere in our body!). For me, I believe being a NETS patient means one treatment, then another type treatment when tumors grow larger; repeat &repeat.
I choose most not-invasive treatment offering best quality of every day!
That’s my 2cents…

I’ve been on 2 monthly injections for close to 2 years now.. I didn’t have any surgeries or chemo. Going for another MRI at the end of the month, after we will be discussing the next step which is the PRRT Lutathera treatments , it’s good to hear that you have had minimal side effects.. Thank you for sharing…

Yes, I have had mouth sores &
Oncologist gave RX of Dexamethasone .5 ml, a mouthwash to use 4 times a day. It does help.

@gaylap, I'm glad the prescription helps. Are you currently in chemo treatment? How are you doing?