Oh yes. I have felt drunk for the last two plus years. I don’t use a walker, but I am very mindful as I walk, because I have fallen a couple times.
Like you I have seen many, many doctors who are clueless to help me.
Good luck at the Cleveland Clinic.

I have a long list of LC symptoms since onset in Sep. 2020.

Of those, severe brain fog and dizziness remain in full force.

I have seen 'improvement' (none 100%) in many of my symptoms, through prescribed medication/physical/mental health therapies.

Though they all contribute, brain fog has been the primary debilitating symptom making work impossible. I have also had continual moderate to severe dizziness and balance issues. I do not use a walker. I have not yet fallen, though it was kind of iffy a few times in the shower. We have a shower chair to use when I'm feeling particularly unbalanced. If I'm walking in an open area I have room to weave. If in a more confined area there is usually a wall, chair, counter, railing... handy to grab, lean on to, slide down to the floor from, to keep my balance or me from falling. Trying to always be hyper focused on where my feet are going helps me avoid stumbling. I have had Hearing and Balance PT where I learned some tips and very low impact exercises and stretches to help be more mindful and intentional in my standing and walking, but saw no real improvement.

Before LC, I was in good health and regularly walking 3-7 miles a day. I have been unable, since, to walk long distances. Depending on the day, only a couple blocks to maybe a mile without Post Exertional Malaise (PEM) kicking in and wiping me out.

I have been fortunate to have a local Long COVID Recovery Clinic within 75 miles with a good team of medical staff to guide me through trial and error treatments to be my best possible self. I hope you will find the same at the Cleveland Clinic. More importantly, know you are not alone.

Yes, my symptoms actually started 2011 after a resp. Infection, Improved but not back to normal. Same in 2019, improved but less than 2011. Got Covid & pneumonia in Nov. ‘21. Exhausted, dizzy, can’t walk far because of shortness of breath and fall frequently. Rheumatologist diagnosed me with CFS (since 2011) following respiratory infection and of course long Covid is the mother of respiratory symptoms. Just so very tired. Sleep up to 12 hours/day but much better than 20 hrs. when I had first had Covid.

Hi Kent,

I am Kelly. Hang in there. Glad you are getting in somewhere. Most Drs are versed with LC so I think we will be dealing with our issues for a while!! I walk with a cane and rollator. Have used a wheelchair a few times as well, like in the hospital because I can’t walk that far. Looking into a CHAT live maybe we can all do. Nice to see or at least hear each other. Keep posted. I will have more questions!!! Yes, I suffer from dizziness (I will also get vertigo that lasts days) and both knees are shot so I’m a fall risk, very wobbly. I will get dizzy, sweats, nausea then vomit. All Long Covid. 🤢

It took me over 3 years to finally be diagnosed with LC. LC isn't really a diagnosis, it is more that the virus triggered bad cells to activate. My autonomic Nervous System is a mess. This causes the GI issues, nerve issues, etc. I have POTS. I would recommend wearing compressions socks or an abdominal binder. It helps. I would also eat lots of salt or take salt tablets you can find on line. I am on both gabapentin and cymbalta. They help, but nothing fixes/cures any of this. I had a happy, healthy, active life before this. I can't drive anymore. I have the extreme form of neuropathy, CRPS, in my right foot, my hands, my back and my neck. It is miserable. Surgery seems to make it go crazy. I have had 3 surgeries and they were minor but insanely painful due to the neuropathy. I have autoimmune issues. I am still working, but working from home. I have brain fog. I have times that I just can't think. It is terrifying and embarrassing. I have to time my meetings carefully and end up rescheduling a lot of them due to having bad days. I can think the right thing but what I say will make no sense. My hands have gotten really bad. I see a doctor Wednesday. I have a really good Rheumatologist and am seen by the Johns Hopkins Long COVID clinic. I am afraid I am going to lose my ability to work. It is helpful to finally have doctors who believe me and provide care with taking all the symptoms I have in consideration. But I find I still have new issues come up or the neuropathy getting worse in different areas of my body. If there is too much going on around me, I can't function. It is so sad. Good luck. I hope you get help. I hope someday someone will be able to figure out how to help more. I have gastroparesis. I really don't like food anymore. I eat one meal a day if it doesn't smell bad. I am somehow fat, which seems so unfair. I have good days and bad days. I think I am on the verge of losing my ability to work. I grieve each new thing I lose. But I do thank God I am alive. I am hoping to find a way to live the best life I can. I really hope we can all do that.