Hi,
Thanks.
Unfortunately IBS is a big field with many many causes, hence the no particular diagnosis and very little research.
I have a lot more info but without knowing the particulars I'd be wasting a lot of time with irrelevant info for everyone.
I understand how desperate people can get and have come to understand the old adage, we are what we eat.
In the last year I have been diagnosed with Autonomic polyneuropathy which besides being a death sentence, likely quicker than everyone else who eventually die. It has taken control over my digestion leaving me as just a bystander to my health. Along for the ride until I decide I have had enough. No cure , no treatment and just left with suck it and see, then I have to be careful of just what I am sucking as well! Very few medical personnel even understand it if they are aware of it, at all.
Autonomia is one of the two main nervous system in the body, this one controls all we do without thinking, like heart beating, swallowing, and many more functions, that does not include the obvious mistakes we invariably make through absolute stupidity! Although I have been known to hide behind that excuse. So far it has ranged from temporary paralysis of my lower body to restricting the throat, poorly controlling with the bladder and bowels and playing with my blood pressure all when it wants, irrespective of my conscious input. Some of the symptoms are now permanent while others are random and becoming more numerous. At least the upside of this disease is there is nothing to do or try so I just deal with each day as it arrives and am not a bit concerned about the day that doesn't arrive! Death is the final symptom and escape from this disease. In some respects the heart stopping instantly beating without warning beats a long drawn out slow death, as I see it. With my luck it could be any one of the numerous health issues I'm dealing with that takes my life. Then again it could be a simple act of stepping out into traffic without watching what I'm doing.
People keep telling me "crap happens" and I have to say I wish it would! This disease doesn't allow me control of the relevant muscles to get it done, easily.
What is left, hope for something better tomorrow. That is what keeps driving me forward. As long as I don't dwell on my health issues too much, they don't hurt and I can plough on trying not to make too much of a mess of my life.
The real beauty of this disease is I can stir up Dr's without recourse from them. They can't withhold help or treatment that doesn't exist. Of course I equally can't complain about my health treatment, there is none. It is liberating to be able to state my thoughts without meaningful interference from them while challenging their deliberations. They know gobbledygook doesn't fly with me anymore. I have come to understand Dr's are not Gods of medicine, they are no different to you or me, able to be wrong, make mistakes and are just plain "human", the failing of us all!
Cheers