Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi, Steve
I don't blame you for sticking with the Alpha-Lipoic. If you don't see that Alpha-Lipoic is doing any harm (and may actually be doing some good), why not? I'm taking the same approach to my EB-N5––with my doctor's blessing. However, he does check in with me every so often to ask if I've noticed any positives or negatives. Since the jury is still out, the most I can tell him is, "No trends yet, either way." I see it as a Devil you know vs. a Devil you don't situation.
There are so many "remedies" whizzing around. While I'm not averse to trying something new, for now, at least my Devil, I know the approach is keeping me from going crazy.
What's the title of your wife's book? I'm very much interested. As is my partner. She's a poet. And, when my increasingly unreliable balance led to my seeing the wisdom of retiring from the stage (the adage, "Don't fall over the furniture," had become un-funny), I went back to my old love: writing. Until Covid put the kibosh on our program, Mell and I taught a seniors' writing class at our local library for several years. And we're still part of a writers' group. So, my partner and I are interested in all things literary. (Thank goodness I'm not yet too wobbly to hold on to a book!)
Congrats on taking improvisational comedy classes! I dipped my toe (years ago) into improvisational acting, hoping I'd be good at it, but I wasn't. I fled back into the tedious, lonely world of memorizing lines!
That's so true, Steve, even when it comes to our neuropathy: The show must go on!
Cheers!
Ray
Replies to "Hi, Steve I don't blame you for sticking with the Alpha-Lipoic. If you don't see that..."
Connect
Hi Ray--It's definitely a case of "the devil you know"! (Though I'm exploring some new shoes invented by a professor at UC-Santa Barbara, just up the road from here. They're designed to improve the gait of stroke survivors, people with MS, and those with walking difficulties like foot drop. I feel a little odd putting myself in the same group as people with life-threatening disabilities but if the shoe fits...
Anyhow, I'm glad you're thriving on the writing scene! My wife's book is called "Prisoner of Wallabout Bay". It's historical fiction based on the British prison ships in New York Harbor where some 11,000 Americans died during the Revolutionary War. Bones washed ashore in Brooklyn for years afterward and today there's a 150-foot obelisk in the soldiers' memory at Fort Greene Park. I grew up in New York, but who knew? My wife -- Jane Hulse--is from New Hampshire, grew up steeped in Colonial lore, and had never heard about these floating dungeons till she ran across a book about them a few years ago.
I'm planning to get back to writing soon. I suspended work on some short stories when I got the Improv bug but I'll be trimming my Improv activities in the next month or two. I've decided that at this age only chores should feel like chores.
Hang in there, Ray!