Hi, I’ve discovered this site last year December and was amazed how many others are suffering.
I had Covid twice, first time in Feb ‘21 and then in Aug’22. My symptoms consist of; heart palpitations (elevated heart rate just sitting down, skipped heart beats and fluttering) lightheadedness, digestion issues, nerve pain, muscle twitches, congestion in my sinuses and ears, blurry vision, hearing loss, pins and needles sensation all over, in my head all the way to my toes, I constantly feel like I have a head cold and balance issues, I feel like I’m drunk when I walk, I’ve been like this for three years. These symptoms at first would come and go, they would seem to fade for a few weeks and come right back but after the second infection it’s pretty constant.
I’ve seen several Physicians; two different Cardiologists (heart disease and electrophysiology) Gastrologist, ENT, Neurologist, Neuromuscular and my PC Physician. Numerous test; heart monitors, EP Study, Transesophageal, MRI’s, CT scans, upper endoscopy, colonoscopy, stress test, echocardiograms, EMG test and they found nothing. The heart monitors did show some disruptions but nothing serious (their words). I found a long Covid Recovery clinic and the doctor said I have symptoms of Dysautonomia (POTS) but I have not been officially diagnosed with LC. Other than my LC Physician none of my other Physicians want to seem to connect my symptoms to Covid. I haven’t worked in over two years after my second infection, my symptoms are very distressing and debilitating. Thank goodness I have a supportive family and a support group that my LC Physician put me in contact with, we meet every single Thursday via Zoom, helps me to navigate through this. I don’t cry as much as I use too but I struggle everyday and I mean struggle EVERYDAY, I try and push through the bad days and try to enjoy the not so bad ones. I was so active, working, going to the gym, jogging or power walking 6-8 miles every week, now running an errand is daunting and I “crash” a lot. It’s so disheartening, grieving a life I no longer have. But trying to accept this new normal and be grateful of the little things I can do.
Wishing you all better health and happier days.