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Windyshores, Trying to get this out to you and I just lost a couple of paragraphs. Trying again. I want to say first of all that I hadn't read anything regarding Reclast side effects when I started experiencing these pains etc. I had the infusion in February of 2023. The day after, I woke up with major pain in my shoulders. I've never had shoulder pain. It got better over the next couple of weeks. Then I started having excruciating pain in my right foot when I went from a sitting to a standing position. I called my PCP and told her I needed an x-ray because I thought my foot was broken. The x-ray showed nothing. Since then, the shoulder pain has subsided but the foot pain has come back about three times. It lasts about a week each time. Other side effects that I've had since the Reclast infusion are weak legs, swelling in feet, pain in legs, and toes (toe pain so bad I sometimes cannot sleep) numbness in my right leg, dizziness (serious dizziness) cold sweats, unable to regulate my body temperature, headaches. These all come and go. Thank goodness they don't all come at the same time. I've talked to several doctors of different persuasions, but no one can give me a good answer as to why I'm having these side effects (Of course, I'm convinced it's the Reclast due to the sequence of events), or, more importantly, how to fix the problems. It stays in your body for five years. Is this what I have to look forward to for the next three and a half years?? WindyShores or anyone, let me know if you have any questions.
Replies to "Windyshores, Trying to get this out to you and I just lost a couple of paragraphs...."
I am glad (not for your pain) to see I am not crazy as my leg pain also comes and goes-maybe a week at a time then, like a switch, almost feels normal again. Sometimes for a reason such as an activity or overuse but sometimes no reason at all. It, too, keeps me awake and feels like a deep pain/aching. I have had this when I took Fosamax in 2008 so stopped it but took a chance on Reclast. I had one dose and will not take another when due late January. I will see how long it lasts.
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@dingus I do not remember this whole thread so if what I'm going to say is a repeat please excuse me. I just want to suggest that you not put all your eggs in the Reclast basket. But to leave open at least a small possibility that it could be something else going on and that something else could be important to know about. I'm not doubting your symptoms and the sequence of events certainly points to Reclast but sometimes we can be mislead by the sequence of events.
Example: my wife has had 2 knee surgeries and a torn hamstring that she never fully recovered from, all in her left leg. When she started having more weakness in her left leg we assumed it was related to all the past trauma in that leg. She started seeing orthopedic doctors and sports chiropractors and doing physical therapy and other body work. Nothing helped and she started having more trouble coordinating movement in that leg. Finally the PT said to her "this is not right, your muscles are stronger and you are not improving, you need to see a neurologist". Well, she had Parkinson's. Within a minute of walking into the neurologists office he said "it looks like you have Parkinson's but we'll do tests to confirm that". None of the orthopedic docs or the chiropractors had even thought of this. Nor had we. We were all mislead by the prior traumas to her leg into thinking that the previous physical traumas to her leg were the cause of the current issues.
Just in case anyone thinks I'm suggesting you have Parkinson's or some other terrible disease - I'm not suggesting that. Only offering this as an example of how we all can be mislead including the doctors. Best of luck to you in finding a solution