Anyone go to a Mayo Clinic for neuropathy?

Refusal of service for me too. I think Mayo looked at all the therapies and doctors I went through and decided I was not worth to invest their time. I wanted to pay from my own pocket. I was a patient of Cornell and John Hopkins, never experienced anything like that.

What other options have you been looking at? Shockwave, etc. Also have you looked into Loma Linda-I plan on looking into their neuropathy treatment program.

@pitord and @bettyg81pain , Not receiving an appointment can understandably be both disappointing and frustrating. Unfortunately, Mayo Clinic has more requests for appointments than available openings in many departments. In some cases, Mayo Clinic experts may review a case and determine that they cannot offer treatment that would be beyond your current treatment. In these circumstances, in addition higher-than-normal demand, Mayo Clinic does not want a patient to incur additional costs for evaluation or travel if it feels they cannot offer care that is different from what you’re already receiving.

I have been suffering from peripheral neuropathy brought on by chemotherapy since October 2022. The symptoms have not declined, in fact they have worsened. I contacted the Mayo Clinic earlier this year, requesting an evaluation and possible treatment with scrambler therapy (Calmare.)
I was turned down with the response basically that Mayo cannot treat the vast number of people requesting treatment. Through my research I have found an independent clinic in Wisconsin that offers scrambler therapy. This clinic is one of the very few "Calmare Certified" treatment facilities in the United States. While I would have preferred treatment through a medical facility, and the Mayo Clinic in particular, the Wisconsin treatment center would work best for me given its location and certification. Has anyone sought and received Calmare treatment through one of the certified treatment facilities?

I do understand that and really wondered what test they could give me that already has not been given. Are you familiar with the Loma Linda treatment? Was going to look into their neuropathy plan.

Welcome @flaherty2185, While you wait for other members who have experience with Calmare Therapy, you might find it helpful to read what others have posted on the treatment. Here's a link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=Calmare%20Therapy.

It's great that you have found a treatment center closer to home. There are also other discussions and comments by members on what helps chemo induced neuropathy if you want to scan through those - https://connect.mayoclinic.org/search/?search=chemo+neuropathy+what+helps.

Have you looked into any other complementary or alternative treatments?

I am not familiar with the Loma Linda treatment. I will look into that as well.

I have tried numerous other treatments – red light therapy, Tens, Stem cell injections, laser treatment, acupuncture, and all of the drugs that are prescribed for neuropathy. Nothing has provided more than very temporary relief, if any. And the side effects from the drugs I've taken have lead me to discontinue those as well.

Yes, I had all appropriate testing for nerve related issues and saw multiple specialists in my local area at a large teaching Hospital. No, Mayo did not provide a reason for denial, but did recommend that I continue to work with my local medical care team. That led me to believe there was nothing much more they felt they could offer.

In addition, Mayo Clinic gets inundated with people wanting to be seen. Sometimes they don't have openings and may need to prioritize folks with more urgent matters. It's difficult to assess whether if you're denied once you'd be denied twice or three times. There have been instances of persistence paying off when applicable.

Where are you in your journey? Have you been diagnosed with neuropathy already? Do you feel there's more testing to be done?

Older post I know, but I assume that the oncolgist suggested tht you might get neuropathy from chemo. Did he/she suggest what you could do about it?