Connect
← Return to Are we overdosing Reclast???
Discussion
Comment receiving replies
@normahorn I wrote "I am not saying there should not be lower doses." No argument here. But I am not as hopeful about that change happening, and not sure how many patients need a lower dose either. It does look like the higher dose works better over 10 years.
I have lower doses of every single medication I have taken in the last 25 years. Usually 20-25%. I have also done that with every osteoporosis medication but partly because of medical necessity. If people cannot handle the full dose, they should work with their doctor or find another doctor. Most people do handle Reclast without problems.
In terms of increased frequency of infusions, I would be concerned about the effect on cancer care . A possible course to advocate for would be a lower dose on the same schedule as the full dose- once or twice a year. I have been told by an endo and by an infusion nurse that 2mg doses are common. Can't people ask for that then?
Replies to "@normahorn I wrote "I am not saying there should not be lower doses." No argument here...."
Connect
Basically I am saying, if there is good reason for a lower dose, women (and men) should be empowered to request a lower dose. If a doctor says no, find another doctor. It is easier to effect change that way than to get the company, infusion center or system to change. Change from within.
To say "we are being overdosed" is a passive position leaving anger and fear. There is a more active approach- ask for a lower dose. For most this is not necessary but for some of us, it is.
In fact, we can legally stop an infusion at any point. The doctor might not be pleased, but we can do that at 1mg, 2mg, or 3.