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Are we overdosing Reclast???

Osteoporosis & Bone Health | Last Active: Oct 23 5:06pm | Replies (88)

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@normahorn

Some of us are rightfully questioning the one size fits all approach. I had cataract surgery without sedation so any would have been more than I needed. Someone else I know was given the standard dose based on her weight (high BWI). That was too much for her. For the second eye, she was given a greatly reduced dosage which was far better for her and for the surgeon. Thankfully, they learned from the first eye and acted accordingly. We deserve to be treated as individuals, to a degree, with osteoporosis meds. If lower doses are reasonably feasible, we should have the option to choose those. We are more important than the system.

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Replies to "Some of us are rightfully questioning the one size fits all approach. I had cataract surgery..."

@normahorn I wrote "I am not saying there should not be lower doses." No argument here. But I am not as hopeful about that change happening, and not sure how many patients need a lower dose either. It does look like the higher dose works better over 10 years.

I have lower doses of every single medication I have taken in the last 25 years. Usually 20-25%. I have also done that with every osteoporosis medication but partly because of medical necessity. If people cannot handle the full dose, they should work with their doctor or find another doctor. Most people do handle Reclast without problems.

In terms of increased frequency of infusions, I would be concerned about the effect on cancer care . A possible course to advocate for would be a lower dose on the same schedule as the full dose- once or twice a year. I have been told by an endo and by an infusion nurse that 2mg doses are common. Can't people ask for that then?