My NET started in the pancreas (though I don't have pancreatic cancer) and migrated to the liver. Monthly lanreotide has almost eliminated the small cancer spot I had in pancreas and kidney. NET is stable and I was preparing for some additional chemo this fall (had 4 treatments spring of 2023). However, I've recently been accepted into a trial called-
Protocol #: VMT-a-NET-T101 / VMT-a-NET. Dr Sibley is the study doctor. A similar trial in Germany to treat prostate cancer can be found here: https://www.nejm.org/doi/full/10.1056/NEJMoa1607427. This trial consists of "alpha amino radiation". It is 4 treatments, 8 weeks apart. The first treatment is next Tuesday Oct 8th. I'm not 100% certain how I was selected for this trial though I've been told it;s due to having the right type of cancer, oncologist recommendation, timing (they had a slot available), and my positive attitude. This new Alpha cancer treatment is similar to beta amino but has resulted in the killing of more of the cancer, and more importantly, the cancer killed doesn't recur, and the treatment can be used multiple times. Side effects are minimal. Read more here: https://www.nature.com/articles/s41419-024-06435-w
I'll report back soon with an update, wishing you all the best with your journey.