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Rare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: Oct 24, 2024 | Replies (76)Comment receiving replies
Joyce: Hi: originally Imiquimod was used for something else but has been proven good for treating the manifestations of Paget on the vulva. So far, I am proof of it. I think it costs $0 if you have Medicare supplement, like i have with Kaiser. Side effects of using the cream can be minimized.. I will be glad to go into the details if you need me to. Healing thoughts to all!
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I would very much like to talk to you about minimizing the side effects. However, my treatment for EMPD has been put on hold for probably five weeks. On Aug 23 I suddenly lost the sight in my right eye. It was feared I had Giant Cell Arteritis in the back of my eye which could wipe out the other eye as well. To prevent this I was put in a very large wonderful hospital in St Louis, Mo and given massive doses of steroids. In 3 days they decided it was PROBABLY not that but they continued the treatment. Luckily, I still have the sight in my left eye. After I returned home, it seems like I brought covid home with me and just got out of the hospital after another 10 day stay. I can't seem to get a break. Now I have to get weaned off the steroids before I can start the imiquimod. I am 84 and this has taken a toll on my old body. I will contact you when I am finally ready for that treatment, Thank you so much