Post-COVID Neuropathy/Yale paper

I found this paper interesting and helpful - and will share with my too-many doctors. https://www.yalemedicine.org/news/when-nerve-pain-and-numbness-are-linked-to-long-covid

I’ve always known in my gut that this is what happened to me but I’ve been completely dismissed in every forum or medical interaction I’ve ever had. There is no help coming. This disease was a feature not the bug. Absolutely fucking enraging that there will be no justice for this.

Strongly concur, @mlee5309. I live in DC where we have only a non-voting delegate in Congress or I'd write to her to support the bill introduced in the House for the "Moon Shot" bill for Long COVID. If you have a voting House member, write in support. https://www.congress.gov/bill/118th-congress/house-bill/3258 - any and all of you who do have voting representation.

I’ll just assume this thread will be removed like all other Covid discussions. Writing my Congress person feels like the ultimate munchausen by proxy. Begging for help from the same people that brought this to my door. That bill is so vague and generic and will never go anywhere in an election cycle. Good luck my friend. You seem more optimistic than me. And I hope you are right but I don’t believe any help is coming. No chance they didn’t know this ailment was in the mix. Nobody talked about peripheral neuropathy before Covid and yet it has taken this long to even acknowledge that it’s a possible cause. It’s too late. The nerve damage won’t be reversed in my lifetime.

Thanks for sharing. I have long COVID but I also developed small fiber neuropathy after a viral infection in 2015. It’s always validating to see it recognized, and this looks like a really good blog. They have articles on symptoms I’ve only heard about here in the support group, such as the internal tremors. It’s nice to see that someone is aware of it, somewhere.

@mlee5309, post-Covid discussions are not removed. In fact, there is a support group dedicated to the topic. You might wish to click the link and follow the group and the helpful discussions:
- Post-COVID Recovery & COVID-19 Support Group https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

@jeindc, I merged the cross posts into one discussion that is visible in both related groups. That way you only have one place to follow the discussion about the Yale paper. 🙂

I’m glad you shared my post. I will continue to do this. I hope they help us all really see what we are up against and that there are people like us, and others that are trying to actually learn.

Had Covid 12-24-23 and have had nuropothy in both feet ever since.

Also have had trouble spelling ever since as well.

Merry Christmas Hunh!
Neuropathy is a joy as well. The brain fog has made me forget friends names I’ve known for years. I was forgetting long time clients as well before I had to quit. I was a multitasker. I ended by not being able to do 1/4 of my workload. Not enough hours in a day to try and complete it. My brain is not fit for any job but not is my body now either.