Reclast side effects

Posted by dingus @dingus, Aug 15 2:24pm

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Online list of Reclast side effects is long. No need to report dizziness to MedWatch. It's on there as "dizziness" and "severe dizziness."

Common side effects

Hypomagnesemia
Hypophosphatemia
Nausea
Vomiting
Dyspnea
Hypertension
Ocular inflammation
Constipation
Allergic dermatitis
Arthralgia
Back pain
Diarrhea
Myalgia
Bone pain
Dizziness
Fever
Fatigue
Flu-like symptoms
General weakness
Chills
Tell your doctor right away if you have any serious side effects, including

Increased or severe bone/joint/muscle pain
New or unusual hip/thigh/groin pain
Jaw/ear pain
Unusual weakness
Eye problems
Muscle spasms
Numb/tingling skin
Irregular heartbeat
Sores in jaw/mouth
Get medical help right away if you have any serious side effects, including

Signs of kidney problems
Seizures
A very serious allergic reaction to this drug is rare. However, get medical help right away if you notice any symptoms of a serious allergic reaction, including

Rash
Itching/swelling
Severe dizziness
Trouble breathing
Other things to note

Nausea, tiredness, flu-like symptoms , dizziness, headache, or pain/redness/swelling at the injection site may occur. Most of these side effects are mild and occur within 3 days of treatment. Flu-like symptoms may be reduced by taking acetaminophen or ibuprofen after the treatment. If any of these effects worsen or last more than 4 days, tell your doctor or pharmacist promptly.

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@windyshores

Online list of Reclast side effects is long. No need to report dizziness to MedWatch. It's on there as "dizziness" and "severe dizziness."

Common side effects

Hypomagnesemia
Hypophosphatemia
Nausea
Vomiting
Dyspnea
Hypertension
Ocular inflammation
Constipation
Allergic dermatitis
Arthralgia
Back pain
Diarrhea
Myalgia
Bone pain
Dizziness
Fever
Fatigue
Flu-like symptoms
General weakness
Chills
Tell your doctor right away if you have any serious side effects, including

Increased or severe bone/joint/muscle pain
New or unusual hip/thigh/groin pain
Jaw/ear pain
Unusual weakness
Eye problems
Muscle spasms
Numb/tingling skin
Irregular heartbeat
Sores in jaw/mouth
Get medical help right away if you have any serious side effects, including

Signs of kidney problems
Seizures
A very serious allergic reaction to this drug is rare. However, get medical help right away if you notice any symptoms of a serious allergic reaction, including

Rash
Itching/swelling
Severe dizziness
Trouble breathing
Other things to note

Nausea, tiredness, flu-like symptoms , dizziness, headache, or pain/redness/swelling at the injection site may occur. Most of these side effects are mild and occur within 3 days of treatment. Flu-like symptoms may be reduced by taking acetaminophen or ibuprofen after the treatment. If any of these effects worsen or last more than 4 days, tell your doctor or pharmacist promptly.

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If the reactions are seriously aftecting someone's life, I see no harm in teporting it and letting FDA decide how important having that info is. If they keep getting reports, maybe something will be done.

REPLY
@normahorn

If the reactions are seriously aftecting someone's life, I see no harm in teporting it and letting FDA decide how important having that info is. If they keep getting reports, maybe something will be done.

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@normahorn I just meant it is already listed. Reporting might can add to the frequency stats of side effects on some sites. But personally I report side effects not already known. Sure, no harm in reporting.

Not sure what "can be done." I doubt they are going to withdraw Reclast from the market. It has been around a long time.

Maybe medical schools could teach doctors to google side effects before dismissing our experiences. Again, pharmacists know more.

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@windyshores

@normahorn I just meant it is already listed. Reporting might can add to the frequency stats of side effects on some sites. But personally I report side effects not already known. Sure, no harm in reporting.

Not sure what "can be done." I doubt they are going to withdraw Reclast from the market. It has been around a long time.

Maybe medical schools could teach doctors to google side effects before dismissing our experiences. Again, pharmacists know more.

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Thanks every one for your comments, but I don't need to know the side effects...I'm living them, and have been for a year and a half. On another thread someone had asked for the name of a doctor in the NY/Pennsylvania area, and some one sent him a name. That's what I need. Someone in the Houston area who has treated patients with these side effects.

REPLY
@255anny

I've read so much, it is all meshing together - 🙂
If I decide to do the Reclast, then I know I will hydrate and hydrate with electrolytes as well.
And ask about the longer infusion time.

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I am also contemplating Reclast, but very concerned about side effects. I am 57 and have Osteoporosis. My diagnosis was a huge shock, as I have been an athlete my whole life, I rarely drink and do not smoke. My Nephrologist and Urologist have said it is okay to proceed with the Reclast, however, I feel like I need to try HRT and AlgaeCal before moving forward with Reclast. This forum has been beneficial to me. Thank you.

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@dingus

Does anyone in the Houston area know a doctor who can help me with these Reclast side effects? I've been to three Endocrinologists, one Immunologist and even asked my Gastroenterologist. All of them replied, "Nope. Not the Reclast!" without examining me. Didn't even offer an appointment to talk about it. Surely there is someone in this fourth largest city in the U.S. who can help me. I'm at my wits end.

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@dingus I don't live in the Houston area and I don't know how you've gone about searching for doctors for osteoporosis but if you haven't already you can try Medifind (medifind.com) and it's "Find a Doctor" option. It can't tell you whether a doctor will listen to you about Reclast but it can give some indication if they are really knowledgeable about Osteoporosis. I live in the LA area and I have used Medifind for other medical issues.

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@dingus

Thanks every one for your comments, but I don't need to know the side effects...I'm living them, and have been for a year and a half. On another thread someone had asked for the name of a doctor in the NY/Pennsylvania area, and some one sent him a name. That's what I need. Someone in the Houston area who has treated patients with these side effects.

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Have you tried calling the ReClast manufacturer, describing the effects you are enduring, and asking for their help in finding a solution or a doctor to help you? May not accomplish anything but worth trying. Who knows, maybe they will have useful advise.

REPLY
@normahorn

Have you tried calling the ReClast manufacturer, describing the effects you are enduring, and asking for their help in finding a solution or a doctor to help you? May not accomplish anything but worth trying. Who knows, maybe they will have useful advise.

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@normahorn I have called companies and they refer me to the FDA. The specialty pharmacy that the company uses might be helpful though.

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@normahorn

Have you tried calling the ReClast manufacturer, describing the effects you are enduring, and asking for their help in finding a solution or a doctor to help you? May not accomplish anything but worth trying. Who knows, maybe they will have useful advise.

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@normahorn I think that's a great idea and I might do that. I did file a complaint with MedWatch. Of course I've heard nothing back from them. It's my belief that these severe reactions will be swept under the rug until possibly a law suit is filed and it may take a class action law suit. Just my opinion of the medical field and Big Pharma at this time.

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@lkhender

@normahorn I think that's a great idea and I might do that. I did file a complaint with MedWatch. Of course I've heard nothing back from them. It's my belief that these severe reactions will be swept under the rug until possibly a law suit is filed and it may take a class action law suit. Just my opinion of the medical field and Big Pharma at this time.

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MedWatch called me for permission to call my doctor about a side effect I was having with a med, but it was an unlisted side effect so maybe that was the difference.

@lkhender There have been law suits- both class action and individual- against Reclast (and Fosamax). The ones I found concerned ONJ. I am not sure what happened but on at least one site the company prevailed.

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