← Return to Straight to the liver: Anyone have NETs originating in strange areas?

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@kgrear

Good luck to you!

I have Stage IV carcinoid originally in my ileum, and now in my liver.

Is your insurance paying for PRRT?

Please keep us posted on your progress. Best wishes.

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Replies to "Good luck to you! I have Stage IV carcinoid originally in my ileum, and now in..."

I began PRRT in June 2024 and today received the 3rd infusion without any issues. I am being treated at City of Hope in Duarte, CA, and the first two Lutathera infusions were 80% paid by Medicare and most remaining charges paid by my United Healthcare Senior Supplement Insurance. One item is questionable and was not paid (about $4000) by either; however there has been NO COH or UHC claim or billing. My diagnosis was Neuroendocrine Tumor primary Small Intestine/Stomach with Metastases to Liver; Stage 4; Grade 1. I am grateful for my Medicare and UnitedHealthcare policies and the payment procedures in place. I have been researching the 2025 changes and it sounds like it will be appreciated by all cancer patients. Time will tell.