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Long covid rare symptoms

Post-COVID Recovery & COVID-19 | Last Active: Oct 1 7:29pm | Replies (32)

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@kellysmail2016

I too have had the same burning smell. I’ve had several times that comes and goes. I get a weird taste at the same time. I also have more of a pizza type burning feeling on tongue that comes and goes that started with last Covid in June 2024. Then a canker appeared that was big on the side of my tongue and it lasted over a month. I’ve had Covid 5-6 times, 1st April 2020. Then another Bad one March 2021. I have long Covid pretty bad. Fatigue, pain, nerve pain, joints, edema, HBP, racing heart, brain fog, chest pain etc… like 35 symptoms. Does anyone have the 200 symptoms actual list? Also, I have been to so many Drs. My Cardiologist finally said to me just today, he wants to try to find a way to admit me in EVMS medical school and have them keep me for a bit and work as a team to help me. He said the biggest problem is so many Drs that don’t really communicate and they each give meds for their specialties. I’m on 18 meds now. He is sending to a top Dr at EVMS and see what they can do. It’s a painful waiting game.

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Replies to "I too have had the same burning smell. I’ve had several times that comes and goes...."

A team approach sounds awesome!

Oh my! That's a lot to bear everyday. But like you and many others here, feel that there's no real communication between f octors, the CDC and patients. I mentioned earlier that my husband is a primary care doctor and is very frustrating for him when patients have multiple long covid symptoms. He generally points them in the shedding of a heart healthy diet and ways to reduce inflammation in the body.... and treating their pre-covid illnesses and diseases. I will say this, though, an anti inflammatory diet has really helped. No red meat, no processed foods, limited alcohol, etc. I research all of that on my own. I do believe visiting holistic practioners can help, IN ADDITION TO your doctors. (I'm thinking about going to one nearby. I do go to a chiropractor occasionally. )
I believe that there are many paths to recovery. But I totally agree that it's frustrating mentally and physically to advocate for ourselves. I hope and pray you find relief!!! God bless you!