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Have you got Primary Progressive Apraxia of Speech? Let's connect

Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)
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@colleenyoung

Welcome, @aoibhin. What a relief to get a proper diagnosis with the new neurologist. Allow me to introduce you to @101margu @kholden @elizabethlewis2852 @kellyejean and others in this discussion group who are also living with primary progressive apraxia. Several of them have been living with PPA for many years.

Allyn, are you working with a speech language pathologist? What helps you find hope?

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Replies to "Welcome, @aoibhin. What a relief to get a proper diagnosis with the new neurologist. Allow me..."
aoibhin | @aoibhin | Sep 30 8:02pm

Thank you 🙏

I do have a speech therapist who specializes in neurodegenerative problems. But, like I said, I was just diagnosed.

I have hope from my daughter. I have hope from speech therapist. I have hearing that some people here have lived years with this.

But hearing there nothing I can do is a hard pill to swallow.

Thank you for this space

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