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Have you got Primary Progressive Apraxia of Speech? Let's connect

Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)
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@aoibhin

Hi. I am Allyn.

Just diagnosed as having Primary Progressive Apraxia. After 3 years of my neurologist telling me nothing was wrong. I finally met a new neurologist who diagnosed me in 7 weeks. I thought I am going crazy. It looks maybe I am heading that way.

It seems hopeless. I am trying to live every day with hope. But it is getting harder the more I learn.

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Replies to "Hi. I am Allyn. Just diagnosed as having Primary Progressive Apraxia. After 3 years of my..."
Colleen Young, Connect Director | @colleenyoung | Sep 30 7:37pm

Welcome, @aoibhin. What a relief to get a proper diagnosis with the new neurologist. Allow me to introduce you to @101margu @kholden @elizabethlewis2852 @kellyejean and others in this discussion group who are also living with primary progressive apraxia. Several of them have been living with PPA for many years.

Allyn, are you working with a speech language pathologist? What helps you find hope?

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