I had suffered with lichen sclerosis for quite a few years before being diagnosed with it. Always thought maybe yeast infection or being sensitive to detergents until I developed a lesion on the right side of vulvar. Biopsy came back vulvar cancer stage 1B. A life changer as many I’m sure will say the same.
No surgery had 32 rounds of radiation and 2 chemo treatments. They wanted me to have 5 chemo treatments but I could only stand 2. It is a year later. Had 2 pet mri’s each time came back good. But still live in fear each day. Even the smallest pain in a toe makes you think is it back. Crazy! I do have late side effects from the radiation. But I’m alive . If anyone would like to share their experiences I would love to hear from you so we are not so isolated. Thanks for listening!