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I'm right there with you! My mom didn't have to go on dialysis until she was 89. She could only take it for 2 years,which was longer than the nephrologists had expected. She kept holding on for our family, but we saw her failing everyday. She was not coherent and before she decided to stop dialysis,she was throwing up everything she ate and drank. It took awhile for hospice to even step in, which was very disappointing; however, once they were there,she was given morphine and passed peacefully. She lived 9 days after stopping dialysis, but it wasn't pleasant. Unfortunately, I don't have much trust in the medical profession. They lie about the effects of dialysis, they lie about medications, and they lied about the effects of radiation and chemo, when I had cancer. I have reached the point to "Let go and let God". I wish you the very best. We do what we can and take it one day at a time!🙏♥️
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susangail53, we are on the same page. I had 2 dx of breast cancer. One in 1993. A tubular cancer the pathologist told me. I called to talk to the pathologist, as a wise cancer survivor suggested, rather than the oncologist or surgeon. He said highly likely I would be in my 80s (I was 35 at the time) before the tubular cancer would metastasize. Tubular cancer is very slow growing and mine was very small < 1mm) I refused chemo, radiation and a double mastectomy with reconstructive surgery as the oncologist/surgeon suggested. This is my experience and do not suggest anyone follow what I did. Everyone must make their own decision about their medical care. I believe the body has a wisdom of its own. We do need medical help, but there are certain situations we should think long and hard about the treatment, side effects, and long-term quality of living.