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← Return to Kidney numbers dropped
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Agree with you, susangail53. I am in 4th stage, GFR 25. I will not go on dialysis. And a transplant is so far off in the future, if I'm even approved. There are many that live comfortable lives for as long as they can in stage 4, even stage 5. I asked my nephrologist what the process of dying is like with kidney disease. Let's face it, I want to know. She said painless. You lose energy, sleep a lot as potassium levels rise. I plan to go that route. Thank you for your honesty. Please keep us informed of improvement on Oct. 31 appointment. My next blood draw is in November and done every 3 months. GFR reduces each time but I now get Cystatin C tests as well.
Replies to "Agree with you, susangail53. I am in 4th stage, GFR 25. I will not go on..."
Hi. My GFR levels have been 58-62 for last 2 years or so. In Nov 2024 : 60, March 2025: 58, & then April 24: 28. That's more that 50% decrease in little over a month.
I was shocked. I feel some relief after reading here that GFR can change so quickly. How were your your numbers the next time you were checked? I'm hoping you are doing better. My regular Dr ordered these last tests and I'll see her next week. My Nephrologist appt is few days later. I am praying that a recheck on tests will yield better results.
Regards,
Debbie Roland
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I'm right there with you! My mom didn't have to go on dialysis until she was 89. She could only take it for 2 years,which was longer than the nephrologists had expected. She kept holding on for our family, but we saw her failing everyday. She was not coherent and before she decided to stop dialysis,she was throwing up everything she ate and drank. It took awhile for hospice to even step in, which was very disappointing; however, once they were there,she was given morphine and passed peacefully. She lived 9 days after stopping dialysis, but it wasn't pleasant. Unfortunately, I don't have much trust in the medical profession. They lie about the effects of dialysis, they lie about medications, and they lied about the effects of radiation and chemo, when I had cancer. I have reached the point to "Let go and let God". I wish you the very best. We do what we can and take it one day at a time!🙏♥️