Amen! Thank you Bill for your heartfelt message. Unmet expectations lead to resentment so I too have kept them at zero. Honestly, I can understand why people do not want to volunteer to help. Someone once said to me, that our homes have become the ones no one wants to come to anymore. The smells, visual decline, and facing mortality are just a few reasons why.
You mention you are "Afraid of being left emotionally alone, physically alone, and spiritually alone. " As horrible as this disease and the daily tasks can be, there is some routine and normalcy. I worry about being physically, spiritually, and emotionally alone when my husband passes after 47 years of marriage. Everyone says I will be fine but that feels like patronizing. Thank you so much for sharing and letting us know we are not alone on this journey.