Burning nerve pain, with raw sore feeling under the ball of my feet

Posted by cindylyn @cindylyn, Sep 28 7:41am

Hi all looking for any advice for relief for severe burning pain in my feet with severe raw feeling of open wounds under the balls of my feet and back of my toes, I can’t wear socks, slippers or shoes without severe uncomfortableness and burning feet.
I’m a 48 yr old woman, who’s a complicated case with many health issues, and undiagnosed with some ailments. I’ve Small Fiber Nerve Neuropathy, Fibromyalgia, Type 2 diabetes, possible PoTs, nearly died 16 years ago from Vasculitis called Microscopic polyangiitis, menopause, depression, as I’ve no life, dealing with severe fatigue and barely sleep at night. Dealing with palpitations and high Heart rate when standing and really low Blood pressure when laying down, dizziness, balance issues, eye sight issues. So many things wrong. But the worst thing that really prevents me from day to day stuff is my feet. I’ve spent so much money on socks or shoes or creams, ice socks. But looking for a slipper that’s cooling or socks as my feet are cold yet burning.
Sorry for long complicated question, but I don’t do things easy it seems. So any advice I greatly appreciate it. Thanks.

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@dlydailyhope

@cindylyn
Do you have your diabetes under control and have you been able to change your diet to help you lose weight. That might help with the neuropathy symptoms. Have you been diagnosed with/treated for sleep apnea (which may explain some of the fatigue) and do you take melatonin to help you sleep? If you haven’t tried alpha Lipoic acid and Acetyl l carnitine supplements to help with your neuropathy symptoms, this may help. I have small fiber neuropathy and the supplements help me.

Were you ever told you were deficient in vitamin B12 or iron? You may want to check for vitamin B6 toxicity, too. Do you get any exercise through physical therapy/pool therapy? It is good to increase circulation to your feet.

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Hi ya thanks for your reply.
My diabetes is under control, and my B6 , Iron, is fine. But showing high in few of my other B’s when I had my labs done. I can’t remember the results from the B6 test done but think it was fine. I do take the Alpha Lipoic Acid but haven’t noticed any improvement, sadly only deterioration for me.
I’ve my sleep study test booked, but I’m dealing with huge drops in my BP was laying down, and huge increase in Heart Rate when standing or moving, which causes off balance, and a lot of dizziness.
My feet or so bad I can’t wear any comfortable shoes, and any walking or gentle exercise is out if the question recently between my feet & feeling I might faint.
And I’m not a great eater, I try to eat at least one meal a day, but when I do eat even though I’m overweight I eat only healthy foods mainly organic.
I’m just such a complicated case, and 16 years ago I nearly died from the Vasculitis that was affecting my small blood vessels. Myself & my husband are moving from Nevada to Arizona in a month to try help. Because I believe elevation is affecting me and hoping a warmer climate will at least help with the nerve pain.
Anyway thank you I appreciate all the help and your message was very helpful.

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@dlydailyhope

@cindylyn
P.S. Have you ever had your thyroid checked (full blood panel of TSH, T3, T4, TPP)? Thyroid issues can be behind diabetes and heart disease. I have Hashimoto’s thyroiditis and treated with levothyroxine for hypothyroidism post thyroid lobectomy.

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Yes I remember my neurologist doing those last year as was trying to figure out what was wrong with me. After I had an episode where I started stuttering and couldn’t speak properly and had body shakes, with tilting to one side. All my Thyroid tests were fine and recently my basic thyroid test was fine too. But 💯 agree with you that not the basic thyroid test needs to be checked for unusual symptoms.

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@cindylyn

Yes I remember my neurologist doing those last year as was trying to figure out what was wrong with me. After I had an episode where I started stuttering and couldn’t speak properly and had body shakes, with tilting to one side. All my Thyroid tests were fine and recently my basic thyroid test was fine too. But 💯 agree with you that not the basic thyroid test needs to be checked for unusual symptoms.

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@cindylyn
Good luck with the move. My small fiber neuropathy in my feet was actually worse in hot weather but maybe the dryness of AZ may not have the same effect and hot/humid.

Also, to maintain blood sugars, it is better to eat 3-5 smaller meals/snacks that include protein and healthy fats. Eating only one meal a day is not helpful to maintain energy and blood flow and sugars throughout the day. With your blood pressure issues, it is really important you are drinking a lot of water throughout the day, too. Being dehydrated can cause lots of issues.

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@dieterreuther

I am having success fighting the sore and burning feeling at the bottom of my feet with the Naboso products. The socks have a patent-pending Naboso texture onto the inside. The insoles use the same texture. In my case both overwrite the hyper-sensation I am experiencing in my feet.

I wear the socks at home and use the insoles in my sneakers (replacing the original insoles).

The Foot Recovery Socks can be found at https://www.naboso.com/collections/socks
The Neuro and Activation Insoles can be found at https://www.naboso.com/collections/proprioceptive-insoles.

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Oh wow awesome. It’s the first time I e heard anyone dealing with what I go through. Thank you so much. I will look into these. It would be amazing if it helped even a little.
Thanks a million 😊

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@dieterreuther

I am having success fighting the sore and burning feeling at the bottom of my feet with the Naboso products. The socks have a patent-pending Naboso texture onto the inside. The insoles use the same texture. In my case both overwrite the hyper-sensation I am experiencing in my feet.

I wear the socks at home and use the insoles in my sneakers (replacing the original insoles).

The Foot Recovery Socks can be found at https://www.naboso.com/collections/socks
The Neuro and Activation Insoles can be found at https://www.naboso.com/collections/proprioceptive-insoles.

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Ahh not sure I can use them. As both of the socks and insoles have little ball things on them.
A tiny piece of lint feels like a rock under my feet, and I can’t even wear slipper.
But will do a bit more research and might try the insoles first maybe.
Thanks again for your help.

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@dlydailyhope

@cindylyn
Good luck with the move. My small fiber neuropathy in my feet was actually worse in hot weather but maybe the dryness of AZ may not have the same effect and hot/humid.

Also, to maintain blood sugars, it is better to eat 3-5 smaller meals/snacks that include protein and healthy fats. Eating only one meal a day is not helpful to maintain energy and blood flow and sugars throughout the day. With your blood pressure issues, it is really important you are drinking a lot of water throughout the day, too. Being dehydrated can cause lots of issues.

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Oh no crap about the heat. I know when I was there in April I actually had no burning pain and was able to wear socks & shoes. So I’m hoping it will be like that when we move. We will be living up the mountain a bit so doesn’t get as hot there. Hopefully 🤞
Yeah I know it’s not great about my eating habits, I am trying to eat like half avocado, or 2 hard boiled eggs during the day or baby shrimp salads. It’s so important to eat especially with medication & diabetes. I’m from Ireland and honestly struggle with the amount of chemicals is in the food out here, that it puts me off eating, so I struggle to get an appetite.
But I’ve definitely been trying to improve and drink more water.
Wishing you the best with your small fiber neuropathy & hopefully you get relief with your pain. 😊

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@cindylyn

Ahh not sure I can use them. As both of the socks and insoles have little ball things on them.
A tiny piece of lint feels like a rock under my feet, and I can’t even wear slipper.
But will do a bit more research and might try the insoles first maybe.
Thanks again for your help.

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@cindylyn The ball things are actually pointy in order to activate the nerves in the feet. In my case, although I can't walk barefoot and need socks at night to sleep, the foot recovery socks and the neuro insoles seem to "trick" the nerves and overwrite the hyper-sensation of PN. I just got a pair of the activation insoles which are a bit softer to test in my sneakers.

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@randymor

randymor I also am going to try acetyl l carnirine
I have tried r alpha lipoic acid with minimal relief

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Carnitine is the correct spelling It is otc I get mine from Amazon.

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@dieterreuther

@cindylyn The ball things are actually pointy in order to activate the nerves in the feet. In my case, although I can't walk barefoot and need socks at night to sleep, the foot recovery socks and the neuro insoles seem to "trick" the nerves and overwrite the hyper-sensation of PN. I just got a pair of the activation insoles which are a bit softer to test in my sneakers.

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Yeah I’m definitely going to give them a try. But I know what the ball things do, I’m so sensitive to anything under the balls of my feet. My slip on sandal shoes have balls on the insole and I suffer worse from wearing them.
But will definitely try the ones you recommend. Thanks so much for your help, I really appreciate it.

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@cindylyn

No unfortunately not OTC. You need to see a PCP or neurologist to discuss your neuropathy.
Sorry can’t be more helpful

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Thank you - my PCP says to use the Asper creme with lidocaine because I'm taking gabapentin (3 - 300 mg capsules 3 times a day ) and amitriptyline at bedtime.

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