Chemo-induced Peripheral Neuropathy and Breast Cancer

Posted by karendb @karendb, Feb 10, 2019

Hi. Karen here again. Since my last chemo treatment on dec 19th I've had terrible neuropathy in both hands and feet. Has anyone else had this and do you know how long it lasts?

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@launabess

I had the same drugs and same outcome. Been 10 years now and neuropathy has increased up my leg a little past the ankles. I can still do everything, but do use a vibrating machine every morning to bring blood into my feet, etc. Doctors should have told us this could be a side effect, but no mention. I too started noticing it from Taxol infusion and my doctor told me it would not stay with me. It has and is progressing.

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I noticed it almost immediately in my fingers. I thought it was just from swiping too much on my tablet. It felt like I was developing calluses. I mentioned it to both the doctor and nurse. I was told several times to let them know if my fingers got too numb to hold a pencil. They never mentioned the pain that felt like I had those metal binder clips affixed to my finger tips.

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@tullynut

I did not have to continue with meds linked to neuropathy. It concerns me that I might be faced with the need for more treatments/ meds thagg to cause neuropathy. I would talk to them about alternative meds if there are any that don’t or are less likely to cause neuropathy.

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Thank you for reply and wish you the best.

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@gramma206

I was on the same chemo drugs that have been used for decades 4 dose dense treatments with doxorubicin and cyclophosphamide. Second chemo is the one that caused "profoundly severe peripheral neuropathy " 12 weekly infusions of Pacitaxel aka Taxol.

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Sorry to know but that seems to be the case with most of us! My best wishes!

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@gramma206

I'm sending you dozens of hugs! Your story is sad but helps me feel not so alone. My oncologist says no one ever gets such severe neuropathy from these drugs - except obviously I did. I use an infared mitten and foot socks every even for circulation boost.

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And that could be the key. I've read other posts here where they used some kind of mitts and socks with cold packs to prevent a lot of the drugs from circulating to the fingers and toes. This appeared to have mitigated or prevented the neuropathy there.

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@dlmdinia

And that could be the key. I've read other posts here where they used some kind of mitts and socks with cold packs to prevent a lot of the drugs from circulating to the fingers and toes. This appeared to have mitigated or prevented the neuropathy there.

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I used cold pack mitts and socks with 100% of my taxol treatments and still ended up afterwards with the worst chemotherapy-induced neuropathy any of my doctors had ever seen. All I can say is the cold therapy definitely didn't work for me.

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@dlmdinia

And that could be the key. I've read other posts here where they used some kind of mitts and socks with cold packs to prevent a lot of the drugs from circulating to the fingers and toes. This appeared to have mitigated or prevented the neuropathy there.

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Just to clarify: I use the infared now to hopefully encourage nerve healing. Used cold packs during the actual drug infusions.

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I used gloves and booties during chemo so far no neuropathy

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@gramma206

Just to clarify: I use the infared now to hopefully encourage nerve healing. Used cold packs during the actual drug infusions.

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Ahhh, that makes more sense. Thanks for the clarification.

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Hello everyone,
Breast cancer 17mm discovered in November 2023, Her2+++, operation in December 2023, 3 chemo ec then 12 taxols (until June 2024), 18 radiotherapy sessions and on Tamoxifene since August.

I still have neuropathy in my 2 feet and 2 fingers on each hand. It gets worse with the cold.
What bothers me are the strange sensations in my face, in both temples, both eyes and my forehead. It comes and goes, amplified by stress. It's like my muscles are being pulled, sometimes it feels like numbness. No facial paralysis. Just a sensation that drives me crazy.
I'm thinking it could be the taxol, because I've read about similar experiences... But I'm afraid... So here I am to exchange ideas...

Thanks in advance

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@seindroit

Hello everyone,
Breast cancer 17mm discovered in November 2023, Her2+++, operation in December 2023, 3 chemo ec then 12 taxols (until June 2024), 18 radiotherapy sessions and on Tamoxifene since August.

I still have neuropathy in my 2 feet and 2 fingers on each hand. It gets worse with the cold.
What bothers me are the strange sensations in my face, in both temples, both eyes and my forehead. It comes and goes, amplified by stress. It's like my muscles are being pulled, sometimes it feels like numbness. No facial paralysis. Just a sensation that drives me crazy.
I'm thinking it could be the taxol, because I've read about similar experiences... But I'm afraid... So here I am to exchange ideas...

Thanks in advance

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Mine wasn’t as bad, just legs and feet but it wouldn’t go away after chemo (Taxotere). After 7 months, when I finally asked if it was permanent, he recommended trying alpha lipoid acid, 600mg twice daily. Can get at most “health food” places or vitamin shoppes but I got last bottle on Amazon for that strength. Noticed a difference within a couple weeks and continued for 6 months and only have a little residual in left foot.

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