I don't know what did more harm --- PMR or prednisone.
Since PMR is a condition that usually doesn't cause permanent damage to joints or muscles then I need to hold prednisone responsible for some of the harm. In my case, some of the blame must be pinned on inflammatory arthritis too. I hope underlying inflammatory arthritis isn't pertinent to most people with PMR.
I'm off prednisone but my rheumatologist says I still have PMR. I'm still being treated for PMR but I'm on a biologic instead of prednisone. I want to put prednisone behind me along with my battle with daily pain. Yes, prednisone relieved most of my pain. However, if I didn't take prednisone the pain would return. Frankly, the pain would return before it was time for my next prednisone dose. I waged this battle for more than 12 years.
The biologic I currently take for PMR has helped me tremendously. Not being treated with prednisone has made a world of difference in my ability to exercise. I can do so much more now compared to when I was still taking prednisone. When I was still on prednisone, I didn't exercise at all because the fatigue was just too overwhelming. The fatigue had to be caused by adrenal insufficiency assuming I still have PMR like my rheumatologist says.
My excercise is mostly aquacise these days but I also do resistance exercise with elastic bands. I also do aerobic excercise doing the treadmill, steps, and push-ups. I can do 50 pull-ups in the water which really helps my ego!
A physical therapist supervises an exercise class that I attend. I do at least an hour or more every day doing "something" that I consider to be exercise. I don't worry about overdoing anything or pacing myself. However, the exercise I currently do is a far cry from what I used to do when I was younger. I just turned 70 so I try to keep what exercise is feasible in perspective considering my age.
The biggest difference I notice is my recovery time. I can push myself pretty hard and I recover quickly. When I did anything remotely strenuous when I was on prednisone it would wipe me out immediately and I didn't recover until I slept for a few hours.
Delayed-onset muscle soreness (DOMS) is muscle pain that begins after you've worked out. It "normally" starts a day or two after a workout. I felt muscle pain within a few hours and it persisted for days so it wasn't normal. Sometimes I needed to increase my prednisone dose the next day if I did something too taxing. Almost anything required a lot of work so I avoided doing anything at all.
Now I have "normal DOMS" which actually makes me feel good. I feel like I accomplished something now when my muscles are a little sore the next day. I think prednisone wasted away my muscles and now I see a bit of muscle tone which is good for an old guy.
Sounds awesome, Dad. And so glad you found a medication that helps and does not harm. Great news.
So glad you can work out without pain and are gaining the goodies from exercise. There are so many.
Can you tell me, what do you do in your class that the PT runs?
May you continue to feel well and thrive!!!!
Keep moving! Take care and thanks so much for sharing.