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Straight to the liver: Anyone have NETs originating in strange areas?

Neuroendocrine Tumors (NETs) | Last Active: Oct 4 6:02am | Replies (18)
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@dbamos1945

Glad to learn you pursued PRRT Lutathera treatment series. Others have thought it wasn’t working, only to be surprised to learn couple months after completion that tumors had shrunk or disappeared on scan. Then they report that they had several years of feeling great with disease stability. I hope this is your case too!
I am also having PRRT and receiving 3rd infusion 10/1. I visualize it working and am planning on many good days ahead. Hope is free and I am sending you a bushel basket full!

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Replies to "Glad to learn you pursued PRRT Lutathera treatment series. Others have thought it wasn’t working, only..."
kim1965 | @kim1965 | Sep 30 1:00pm

I second dbamos1945 comment on PRRT, the doctors will tell you that the true results won't be able to be read until 90 days after the last PRRT treatment. Big Hugs to you.

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kg | @kgrear | Oct 1 3:57am

Good luck to you!

I have Stage IV carcinoid originally in my ileum, and now in my liver.

Is your insurance paying for PRRT?

Please keep us posted on your progress. Best wishes.

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