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Is the burning a smell or even tingling pain or does it actual blister? I have had no smell post LC for 4 1/2 years now, occasionally smell things oddly but mostly just no smell. I average a smell a day, normally external environmental ones like a particularly mop ( presumably with its unique disinfectant etc) at the swimming pool, but can’t smell the water/ jacuzzi, shampoo/ soap etc. Weirdly very very rarely smell any food/ drink stuffs, or personal smells. Reason I ask about burning is I get sensation like burning in armpits…originally thought I’d got chemical on me somehow and kept washing them then realised it’s a nerve that gets triggered from spine, so could be a something perhaps relating to your upper spine that changes at night time when you for eg settle back on sofa watching Tv, or go to bed…. You can look up which group of nerves come out of which vertebrae and where exactly the nerves run… I’m doing the Italian researchers Glialia protocol of their powders under the tongue, alpha lipoic acid and smell training and after 2 months getting odd surprises of just catching fleeting smells. The fluticasone etc paper seems to be using very recent covid patients rather than long haulers ( sorry brain fog from LC means I have difficulty reading such papers now with any confidence!).
Replies to "Is the burning a smell or even tingling pain or does it actual blister? I have..."
It's a general hot sensation. Almost like breathing in hot coals with maybe a tinge of hot sauce. I do have a slight diminished taste and smell but can taste well enough to know what I'm eating and enjoying food. Maybe this is me new normal?!?! If this is the worst I'll ever feel, I'll take it!
Im so sorry you’ve lost your taste and smell for that long! I am going on 2 years in December and I can tell you, it’s awful! I just came back from a trip to Europe (Paris on Viking Cruise Line) and Vienna, Austria. I couldn’t taste a single thing…. I’m having Stellate Ganglion Block injections and have had 5 so far. The Doctor in the pain clinic tells me to keep coming, but I’m not sure why as it’s not really helping me. I will be making my 6th appointment and will talk to him more about next steps as this is just frustrating me.
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You’re right, the fluticasone paper was done in people who had recent COVID infection and loss of smell, but I was just posting the link because the in the original post put up by someone else, the link was cut off.
I have heard of others trying smell retraining therapy. It was developed for people who lost sense of smell after a viral infection, but this was preceding the pandemic so I’m not sure if there are recent studies but it is relatively easy to reproduce at home.
Basically, you sniff four different scents (usually essential oils) one after the other twice a day for a few weeks, and then rotate them out. It’s based on the idea of neuroplasticity, so retraining the nerves and central nervous system.
This explains it in overview: https://www.enthealth.org/be_ent_smart/smell-retraining-therapy/
And more detailed steps here:
https://mydoctor.kaiserpermanente.org/covid-19/smell-retraining-therapy-and-long-covid
I can definitely relate to the brain fog. I just feel uncomfortable sharing random advice without giving people a way to trace back where it came from if they’re interested in further research >_<