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Need to get off miralax

Digestive Health | Last Active: Oct 10 9:56am | Replies (32)

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@user_ch783e933

I really can't mess around with probiotic and prebiotic stuff, it just doesn't work for me. That acidophilus I was taking is still affecting me, it takes a week or two for the body to stabilize after that, big mistake. And fiber is a problem for me as well, too much is a cause of gas and thin stool. So I have it down to a science but I've eliminated so much from my diet that I have lost weight and don't really care if I eat or not. Now it's starting to affect my balance, I'm feeling a little dizzy and I know it's probably insufficient nutrients.

I'd be interested in the YT channels you mentioned. I know about abdominal massage, I've been using it a while, it's very intuitive actually. But the book you mentioned also, where it's a diagnostic question platform, I'd like to read that as well. The Nutrition Center in my area would take my insurance, and I'm on Medicare/Medicaid. I just don't trust them. I don't want to start relying on supplements and senna and all that stuff, it might mess with my digestion and make everything even worse. I honestly don't know what to do with that colonoscopy prep, it's going to kill my rear end and then it's going to throw off my normal bowel performance for at least days. It's getting to the point where I have to remind myself that dying from colon cancer is worse than living as I am now but that argument is getting weak.

Thanks.

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Replies to "I really can't mess around with probiotic and prebiotic stuff, it just doesn't work for me...."

That’s why I found it more helpful to search specifically for a GI dietician. People don’t talk about this often enough but it’s a known risk that people with GI conditions can develop dangerously restrictive eating patterns and even eating disorders (which makes sense because of symptoms and fear). There’s a term for it: ARFID, associated with chronic illness. For example, any kind of fiber affects the gut microbiome. We couldn’t survive if we completely eliminated any kind of probiotic or prebiotic fiber. Or one could, but not without problems. But it’s hard to get out of the cycle.

I had problems because I heard so many things from many providers some more informed than others though most were well-intentioned, that it gave me food anxiety. My GI dietician was able to help me
navigate my food choices and re-introduce foods in a safe way because I was restricting things that didn’t need to be restricted. And the more you restrict the harder it is to get things back into your diet; it’s like getting stuck in a cycle. You almost have to retrain your body, so there will be a little discomfort while doing it until things get better, and my dietician taught me to manage it, but sometimes it takes some time to feel ready and open to doing that, and also guidance is helpful.

I used this website to find mine; you can just do a search: https://www.healthprofs.com/us/nutritionists-dietitians/ny/new-york?category=digestive-issues

That would be great if the place near you accepts your insurance. I know from helping my mom and dad that traditional Medicare does not cover dieticians except in very specific circumstances. He’s on a feeding tube and they still won’t cover it even though a dietician is the only provider that has knowledge to be able to recommend adjustments to his regimen. Most dieticians in private practice now offer telehealth if as you said, you don’t feel good about those nearest to you.

And sure, I can share the resources I mentioned.