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Novavax Covid Vaccine - Safer choice for PMR Patients?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 30 5:52pm | Replies (5)
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@gila

Glad you asked this question. I developed multiple autoimmune diseases after having Covid in 2021. Really changed my life. I did all the Pfizer vaccinations except the last two. Also had Covid in 2022
and again January 2024, despite being very cautious, staying home and wearing mask. So not sure what caused what. Am quite nervous about challenging my over enthusiastic immune system with more vaccines. My rhuematologist says I should get flu and Covid vaccinations. On two immunosuppressants also, so might not mount much of a protection.

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Replies to "Glad you asked this question. I developed multiple autoimmune diseases after having Covid in 2021. Really..."
lostcoast101 | @lostcoast101 | Sep 30 7:15am

Hi I just wanted to comment to you about the way I've been able to stay safe from COVID that has really worked.

First I followed the science extremely closely the entire pandemic on Twitter and was following a lot of researchers and scientists and reading papers so I was aware from the beginning how serious a threat this virus
SARS-CoV-2 aka Covid really is.

Then I joined multiple groups on Facebook called Still Coviding (including a local one where we get together masked and do activities) and they are fantastic sources of information and resources and filled with truly knowledgeable, helpful, kind people who are still taking precautions and can explain simple yet extremely effective ways we can continue to stay as safe as possible.

I can't tell you how much this group has protected me and kept me safe throughout this ongoing pandemic, but seeing how badly just the mRNA booster affected my immune system, I can't imagine what an actual infection with COVID might do and I hope to never find out!

I'm sorry you've had to experience this, but hopefully with certain precautions in place you can avoid future infections.

And if I do finally catch Covid at some point, I have a ton of strategies up my sleeve to hopefully prevent some of the worst long-term effects thanks to the Still Coviding community people and the fantastic science and tips they share. Take care and maybe I'll see you over there!

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