I am so appreciative of all who have been able to respond to my question.

I am fortunate in that my PCP finally said, with my weight loss, we need to do more than the ultra sound we did, we need a CScan. 8/22 diagnosed with BE. Also fortunate that I knew about NJH in Denver and did all the suggested tests and found out I had a small hiatal hernia..10/23. Once again fortunate to have found this Mayo Clinic Connect that helped me understand the full meaning of and the various techniques of airway clearance and preventative measures.
Where are you being treated that you are in a study? I was "invited" to enter and see if I qualified for the ARIKAYCE study but declined due to the requirement of having to see the pulmonologist for follow ups frequently throughout the year etc. It would have meant 5 hours of driving to the clinic. That would have been a bit too much for me...even though I am capable of the drive..... just don't want to have to do that....did it for many years of driving distances and don't enjoy it any longer at 82. So now I am trying to find a worthwhile pulmonologist in OKC to work with the specialist in Tyler and hope they will. I have been asked to see the Tyler doctor every three months and that is why I raised the question to others. I would prefer to see her once a year since I am doing O.K. and see a local pulmonologist in between once a year and my PCP once a year.....or all of them more when and if needed. So I want to address it this October when I go to Tyler for my PFT and CScan .... and hope all is stable or better..... and then ask if my preference can be implemented.
LVNL - Thank goodness much has been developed and better understood by the medical field in the last few years regarding BE. However, suprisingly, there are still medical people who have never heard of Bronchiectasis. Glad you are in the study and hope you are having an easy time of it with it all.
Barbara