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DiscussionAnyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1363)Comment receiving replies
Replies to "Thank you for your reply! I see my endocrinologist this week and I already asked her..."
@lynn3 Sorry you are having such a reaction to Evenity. That kind of pain does indeed demand some kind of action and a change in course. As @windyshores has suggested another DXA could be a good idea. It might help you decide what the next step should be.
Your score could have gone up or down or stayed the same.
If you've had no gains or even lost bone density then maybe there is no urgent need for a follow up med? You would have had no gains to try to "lock-in and save".
If you've had modest gains like 5-10% increase that could give you some motivation to try a follow up med. Let's keep those gains even though modest.
If you've had good gains like 11% or 15% or 20% you might say, my goodness I want to keep those gains I'll do a follow up med, yes.
I do not know why your endo said "no" but I suggest you have another doc say "yes" as there is no harm at all and plenty to gain in getting another DXA at this point. If possible have the second DXA on the same machine with the same tech person to give you the most accurate info on how Evenity has effected you.
BTW, I'm one of those lucky folks who had terrific gains and no side effects worth even mentioning on Evenity. I think most people have few or no bad side effects but if you do then you have to do something. It does not guarantee that you will have bad luck with the next med. I've been extremely food and chemically sensitive for 40 plus years with reactions to everything from spaghetti to green beans. At my worst I once spent 8 months on one food and distilled water. I just couldn't stop reacting to anything and yet I surprised myself taking Evenity with no problem at all. Your luck could go that way next time.