Ahh, I see. Believe it or not, although I live in a large metropolitan area, it has taken me years to amass the resources I mentioned.
I’ve had chronic pain for years at this point, and the default has been having to do research and advocacy on my own. It’s frustrating for sure.
There is a type of SIBO (methane dominant) that causes slowed motility and constipation, and it is harder to diagnose via breath test than the other one. But if you feel you’ve ruled it out, totally respect that.
Most of this I learned from various books and online resources if finding a provider is out of reach. They specifically focus on patient education and self management because it’s so difficult to get help for gut issues. For example, if you were interested in abdominal massage to help motility, there are YouTube videos by pelvic PTs available online.
I’m also thinking of one author who’s a GI dietician who structures her books as diagnostic quizzes similar to what she uses in the clinic—her books helped me. And many GI dietitians provide services virtually and across state lines, which insurance can cover unless you have Medicare. In that case, Medicare stupidly doesn’t cover a dietician except in highly specific cases. Cash pay adds up but someone who’s the right fit could be really helpful. Integrative or holistic doctors also tend to offer virtual visits, especially if you find someone in-state.
There’s even a GI dietician/psychologist team I follow who just put out a book and started a podcast focused on actionable tips. I’m happy to list some of them off in case you want to look into them for your research. I can send some along when I’m in a spot where I’m sitting still, but no obligation.
I’m not familiar with your condition where fiber causes inflammation, but Sunfiber specifically is IBS-friendly and has been shown to help both diarrhea and constipation, and improve the amount of good bacteria in the gut. It’s very well-tolerated (and I say this as someone who usually doesn’t tolerate things that are well-tolerated), but it sounds like you may have a different condition.
With hydration, I have POTS, which requires a lot of fluids but like you said paradoxically GI symptoms make it hard to take in fluids. So I rely on electrolyte supplements (Klaralyte is in capsule form) and electrolyte solutions—Skratch Labs and Tailwind make good low sugar (real sugar is required for electrolyte solutions to work properly) and sugar-free versions without fake sugars that don’t taste horrible. The electrolytes help your body absorb more water (as opposed to losing it through urine and sweat) so it’s especially helpful for me because I struggle to take as much in. I’d like to think it also helps the constipation.
It’s super frustrating, but there are options.
I really can't mess around with probiotic and prebiotic stuff, it just doesn't work for me. That acidophilus I was taking is still affecting me, it takes a week or two for the body to stabilize after that, big mistake. And fiber is a problem for me as well, too much is a cause of gas and thin stool. So I have it down to a science but I've eliminated so much from my diet that I have lost weight and don't really care if I eat or not. Now it's starting to affect my balance, I'm feeling a little dizzy and I know it's probably insufficient nutrients.
I'd be interested in the YT channels you mentioned. I know about abdominal massage, I've been using it a while, it's very intuitive actually. But the book you mentioned also, where it's a diagnostic question platform, I'd like to read that as well. The Nutrition Center in my area would take my insurance, and I'm on Medicare/Medicaid. I just don't trust them. I don't want to start relying on supplements and senna and all that stuff, it might mess with my digestion and make everything even worse. I honestly don't know what to do with that colonoscopy prep, it's going to kill my rear end and then it's going to throw off my normal bowel performance for at least days. It's getting to the point where I have to remind myself that dying from colon cancer is worse than living as I am now but that argument is getting weak.
Thanks.