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Just started a week ago the big three and feel so very sick
MAC & Bronchiectasis | Last Active: Oct 19 2:38pm | Replies (47)Comment receiving replies
@justaussie I am sorry to hear how hard this is for you. I was in the same situation at first, and thinking strongly about stopping the meds, but my primary was awesome at working with me to get through it (the pulmonologist was a crusty old guy who just said "yeah, it happens to everyone") I managed 18 months, taking them one hour before bed and eating a small snack with some ginger tea. I think it would have gone better in 2024 as they would have added Arikayce after a year instead of switching to daily meds.
Here are the things that finally worked for me - ginger tea, Gin-Gin (ginger) hard candies and ginger beer made with real ginger and eating 5-6 tiny meals a day.
Some things never tasted good while on the meds, like tomato sauces (fresh were fine), most meats, onions in any form.
Have you tried adjusting your diet?
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Thank you. It's horrible as you know well. Will get some ginger tea and ginger candy and ginger beer or ginger ale. Food does not taste good and some of it tastes absolutely horrible. Had some yogurt and muesli this morning - but the yoghurt tasted dreadful. Had bread for dinner. My coffee is tasting horrible too. Something I usually really enjoy. Usually love salads and fish - but honestly just want to eat bread or carbs right now. So wish I could get rid of this dreadful taste in my mouth all day. I usually get such pleasure from good food - I'm a bit of a foodie and love fresh and delicious food normally. Have you had any experience at something that works for getting rid of the terrible taste in the mouth? It's not metallic perse - but just feels like I want to throw up all the time. It is worst just after taking the meds of course. Thank you.