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Has anyone been diagnosed with CRPS? If so, can you share your story?
Chronic Pain | Last Active: Sep 29 10:00am | Replies (11)Comment receiving replies
Sorry to hear about your suffering =(. It’s sadly too common. I agree, PT has been the most helpful for me—but only when it’s the most appropriate. It’s well past time now that providers need to learn that pain isn’t just linear, that it’s a message the brain sends out so often and always with chronic pain syndromes we have to find ways to retrain the brain. Sigh.
I got lucky and after “only” two years of PT that made my condition worse, I found a PT who understood chronic pain.
Have you tried GMI (graded motor imagery)? It’s a treatment for CRPS that has been effective for me. You can start it on your own when without a PT, though it’s better with someone to guide you.
Replies to "Sorry to hear about your suffering =(. It’s sadly too common. I agree, PT has been..."
Thank you!!!
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Thank you for your reply.
As with you, PT was utilized when most appropriate/needed. Incorporating what I learned that the amazing therapist who worked WITH me definitely has helped keep the most intense pain levels at bay. I don't want the affected muscles, etc., to become tight/atrophied.
As you also experienced, I had my share of therapists that truly were not versed in proper technique, modalities, etc. Had no problem with ceasing "treatment" and moving on. Not ONE of the many clinics and private therapists had ANY clue what CRPS involved....although about three did say "...but I'm willing to try my best to help you." Commendable. But not what I needed.
No idea what GMI involves but will google info. Gracias for that tip.😊. But at this point and time, my focus is on the decisions that must be made regarding much more serious CNS problems and extensive brain demyelination. For sure, never a dull moment, always another dimension.🤔