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Anyone else been diagnosed with a borderline ovarian tumor?

Gynecologic Cancers | Last Active: Sep 29 6:15pm | Replies (70)
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@naturegirl5

@slanepac2024 So you are now 3 weeks out from surgery? Is that correct? Is the 6 week follow-up (now 3 weeks away?) with your surgeon? I had to wait 6 weeks after my hysterectomy while I was healing before discussing treatment recommendations with my gyn-oncologist. It felt like a long time to me but it also took me at least 2 weeks before I felt I could go back to work.

I get concerned whenever someone says that they don’t feel comfortable with their support team. What about your surgeon? Has your surgeon spent time with you and do you feel comfortable talking with them?

Given what you’ve written here I’m wondering if you’d like to get a second opinion at Mayo. You aren’t that far away from the Mayo Clinic in Jacksonville, FL. You could ask your surgeon to make the referral or send off a request yourself. Here is the link:

Mayo Clinic Appointment Requests (for all 3 Mayo Clinics including the one in Florida):

— http://mayocl.in/1mtmR63

MD Anderson is also a good choice. I don’t know how virtual visits might work at MD Anderson. I do know you can schedule virtual visits with Mayo Clinic depending on the reason to meet with the medical provider.

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slanepac2024 | @slanepac2024 | Sep 29 4:38pm

Thanks for your response Colleen! I am now just over 4 weeks out, and have my post op, “cuff check”(!!), on 10/10, second opinion with Emory on the 8th. I have only seen my surgeon once since the surgery, and that was before the tumor conference met. I did speak with his PA that Friday, and she basically said that they discussed treating me with Letrizole, and apparently visits every 3 months for at least 2 years with an exam and blood work. Depending on those results and symptoms, a CT. I have a lot of questions and no, I don’t feel as if I have any support from anywhere other than blogs such as this. I am being followed by the high risk breast care center at the same hospital, Northside, and go tomorrow for a diagnostic mammogram and a bone density test, but they are not involved with the ovarian diagnosis. It is somewhat baffling that you’re given a diagnosis that is lifelong as I do have MRD in the abdomen and pelvis..that there is not more of an outreach or support of really any kind~my cytology came back c/w malignancy, and confirmed a serous neoplasm..the path is stg 3a Serous BOT with micro invasion..not sure when that bleeds into LGSOC..path wise.. anyways, will try to get a virtual with mayo, still working as an Orthopedic PA and am 1099, so no benefits or PTO unfortunately ~

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