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What should I know before starting Evenity?
Osteoporosis & Bone Health | Last Active: Jan 9 1:09am | Replies (176)Comment receiving replies
Hello @windyshores , I’ve mentioned to you about my debilitating back pain and fractures in my spine. I know you were in a lot of back pain too. I had my 4th Evenity shot a couple days ago. It was unusually painful and my back pain increased significantly. Today I started having very strange pain on both sides of my middle back. Not sure if this is related to fractures or muscle pain. Have you ever experienced pain traveling from lower to middle and to the sides of your back? What medication you used for pain? I was on Tramadol but stopped working. My pain doctor suggested to try nerve ablation L5, L4,L3 and also to try muscle relaxers.I hoping you can give me some advice I am new to this and don’t know what to do. My endocrinologist bagging me to stay on Evenity. I did blood test for CTX it went from 647 to 332. She thinks this is a good sign. I am not sure why I feel worse.
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@sunny65 are you the one who wrote me about fractures? I started to respond and then lost it....
After fractures the muscles are dealing with a shorter spine and I think of them as confused! After the fracture stabilizes, a lot of the pain is from muscles. I have baclofen and clonazepam but use them sparingly. I did PT massage- I was lucky to find a good one. Tai chi helps.
Evenity side effects for me were neurological (sensations). Dr. McCormick told me that 40% of his patients on Evenity have joint pain. You can read about the role of sclerostin (which Evenity inhibits) in joints and throughout the body. But people seem to have a lot of improvement on it.
Ask your doctor (or read "Great Bones' by McCormick and watch Dr. Ben Leder's You tube video "Combining and Sequential Approaches to Osteoporosis" about whether the 4 months you have done means the anabolic bone growing phase is over. There is a study using Reclast after 6 months of Evenity vs 12 months of Evenity because after 6 months Evenity, like Reclast, is anti-resorptive. So maybe it is okay to stop at 6 months! I hope your doctor can answer that.
@missy61 People don't seem to do Tymlos after Evenity that much but you could ask. Some do Prolia (preferably 1-3 shots) and then Reclast. Maybe you will do well enough on Evenity that you can just go on the "Lock in" with Reclast.
My fractures are T4, T6, T11, T12 (from a traumatic fall 2006), then L1, L2, L4 (from an unwise movement). Not fun.