← Return to Anyone else on Enhertu? What's your experience? How long?

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@westonan

I had a good result with Enhertu. My tumors got smaller and I believe one went away. My doctor was going to keep me on for 6 months but I elected for another 3 months, so 9 months total. What I liked about it was that it was predictable. I was able to play pickleball by about day 12, took walks everyday, though I was tired before about day 10 or so. After my last infusion I thought maybe I had a cold, but it ended up being ground glass in my lungs. I was planning on stopping for a bit of a break so needless to say, I did. I am now on a, "chemo holiday". The main thing I did not like about Enhertu was that I had to have an infusion every three weeks and I live far from Mayo clinic so that has been a challenge. My insurance just decided to approve Everolimus, which comes in pill form. I will begin this treatment after my next scans in two weeks. Some people report terrible side effects from Everolimus while others say it isn't so bad. I am hoping Everolimus works for me if not I may go back on Enhertu but at a lower dose. Also, for certain days on Enhertu I felt nauseous but taking Ordansetron worked for me. Hope this helps.

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Replies to "I had a good result with Enhertu. My tumors got smaller and I believe one went..."

Thank you Thank you. This is super helpful! I've just been wondering whether there is an end point or I'm just getting infusions every 21 days forever! I'm in month four (after a year on Herceptin) of Enhertu. It's working, which is great, but at some point, like you, I'd like to be done with the infusion sessions. I don't know how many people with Endometrial have been on Enerhutu given that it was newly approved for cancers other than breast cancer. Nausea and fatigue day 3 - 10 but that's it. I'll be real interested to hear how it goes with Everolimus. Please let me know if you think of it. Good luck!! Ground glass in your lungs?!!!! That sounds really frightening.