I'm a retired pharmacist but medical care in the usa has deteriorated a lot in the last few decades. Hospitals and drug manufacturers run by mbs's instead of medical people advancing is the biggest problem in my opinion.
I think your problem as mine is best addressed by very slow tapering. I'm beginning to think the body is causing symptoms from steroid withdrawal as much as pmr.

I was diagnosed 2yr ago. I'm now down to 2.5 pred every other day and 8little methotrexate weekly. My osteoarthritis is worse. I'm skeptical of traditional medicine. That's what caught my eye in your post. I somehow bumped into a website about DMSO. I don't suppose you heard of it because medical schools won't touch it. I started using it in a creme form a week ago with huge benefit to my knee. It's a huge topic and worthy of being looked into. I wonder if it will enable me to quit the pred and meth. I certainly hope so but more importantly think I might avoid a knee replacement. It's that amazing.