Thanks for your reply 🙂 I completely agree - I’ve never seen anyone walk/stand how I do here in the UK! I’ve had PT in the past but I really struggled due to the pain (as I was working full time through it for a number of years) and it didn’t help with my posture - I’ve been told for years it was kyphoscoliosis but I could lay (mostly) flat so I was just left floating with painkillers and pain management courses. After my first x Ray (which took 10 years!) the ortho consult diagnosed me with Camptocormia as he’s seen it before. Currently awaiting a referral to neurology to rule out any underlying issues and waiting for a brace to be fitted! So that’s good news. I was shocked that the diagnosis ticks all the boxes for once. I find it a bit odd that I developed this so young, though. I’m hoping it’s nothing serious underlying either.

Unfortunately it was a massive struggle getting here, being told it’s all in my head, I’m feigning for painkillers - pretty horrid. I’m just happy to put a name to it and hopefully get some sort of treatment. I’d love to be able to stand up straight again and be able to live again. I’m not surprised Drs have no clue about this - I’ve seen many and I think I got lucky!