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Testosterone Replacement Therapy after RALP
Prostate Cancer | Last Active: Sep 29 4:57am | Replies (25)Comment receiving replies
I am 70, Started Casodex and Lupron over two months ago, and almost finished with 33 IMRT radiation treatments. My worst issues thus far have been hot flashes, fatigue, and my balls have shrunk (which is not a big deal for me, but surprising, I suppose.)
I am dealing with it. Not necessarily happy all the time and get frustrated at times, but concerned that side effects, especially fatigue , may get worse. The fatigue is debilitating.
Replies to "I am 70, Started Casodex and Lupron over two months ago, and almost finished with 33..."
we both about the same, age included. I get firmagon once a month and take Abiraterone daily. Been on this for the last 18 months. Have the fatigue since the beginning. I will say I don't believe it has gotten worse over time but I sure know I have it. You just have to do the best you can to keep moving. Having it every day at times wears me down. I sometimes have to fight through it so I don't fall into that hole. I consider a good day when I keep my head on straight and have a good time, fatigue be damned. Welcome to the site, so many here that share, and I wish you the best on your journey. Best to all
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One solution to the fatigue is exercise. Get out there and walk at least a couple of miles a day. If you can do some weightlifting or at least exercises that involve weights that really helps and also offsets the muscle deterioration caused by Lupron. Those two things seem to help people the most to relieve the fatigue issue.
Don’t be surprised if Lupron causes you to get a belly or a larger belly, if you can weigh yourself every day and base what you weigh on what you eat it can reduce that belly fat.
As for hot flashes, I had severe hot flashes for the first year on Lupron. As a hot flash was hitting I would feel a lot of fatigue. After a year, my oncologist prescribed a depo-provera shot every three months and it really stopped those hot flashes on Lupron. There are other hormones that can do this, speak to your doctor.
I know one person that says eating tofu every day really controlled his hot flashes, another person in this forum said the same thing. Can’t hurt to try it.
I got an Embr wave device which goes on your wrist and sends cold pulses through your body which really can help control the hot flashes. I used to wake up at night with the sheet, all wet under me, the all night mode of the wave device resolved that problem for me. Embrlabs.com is the website and they have a 30 day trial so you can just return it if it doesn’t work. If you hit it when you start feeling a hot flash coming on, it can really reduce the hot flash to minimal discomfort.