Good morning, Kat. It has been quiet in this discussion the past few weeks, hasn’t it. There was a rush of adrenaline with the newbies (or relatives) having transplants…you @katgob, @mary612 @avaleir, @caregiverx2 @dwolden @clock456 @graycoose @marylou329 @wendymueller, all within a couple months of each other.
Understandably high levels of anxiety and anticipation surrounding our odyssey in the effort of getting a second chance with life. Especially pre-transplant when there is a such a level of uncertainty. The first few weeks after transplant also come with a level of uncertainty. Each individual has their own, unique set of circumstances which can create some unanticipated challenges and even a little anxiety for our doctors! LOL. Such as your doctor saying your kidneys will wake him up at night! 😅. Yup, I had a couple doctors mention that they had a couple sleepless nights with me on their mind too. (Both transplant and AML treatments) That elicited quite a few laughs from all of us…considering I’m like twice their ages. Le sigh…. Anyway, your kidney issues may indeed be caused by the involvement of meds you’re taking. Some of them, such as tacrolimus, interfere with the blood flow through the kidneys. I know you’re no longer taking that medication but it is an example of one of the culprits. Sometimes sloshing water down isn’t enough to clear up side effects of those meds.

Hopefully you don’t have to switch from the Bactrim to Mepron with its nasty taste. But with you being immunocompromised it’s crucial to take one or the other of those meds to prevent Pneumocystis carinii pneumonia. Another possible alternative would be the monthly Pentamidine breathing treatments administered by a pulmonary therapist.

Still can’t believe you’re already at Day +171. You’re always such a positive inspiration, Kat. 🥰