Sorry to read this. I know what you mean. I was diagnosed May 2023, was initially prescribed too low a dosage of prednisone, and could not get out of bed without help 2 weeks later. Dosage was increased, which eliminated the pain for a long time, until I was down to about 3 mg this past February. My doc started me on 15 mg weekly methotrexate at that point, and I've now been off prednisone for about 6 weeks, but he said I'll likely need to stay on methotrexate for at least another year, probably for the concerns you mentioned. I'm glad to be off prednisone, but still feel fatigued often, but for me it has been a fair trade, to be without the flare pain. I had a bone density test yesterday, to see if being on prednisone for 15 months caused notable issues with my bone density. I'm hoping that since I'm slightly young for having PMR (53) that maybe it didn't cause notable damage, but we'll see!

I hope that you get off the prednisone soon! For me, the methotrexate seems to have worked, and I hope it does the same for you. I really hate being on meds, but it is good to be off the prednisone.