What to take for osteoporosis
On Letrozole. Dexa scan shows back to osteoporosis in my spine, other areas still osteopenia.
Oncologist wants me to go on something. I have read many of these posts and am scared about more repercussions from another drug.
Years ago (before BC) I was on fosomax. I think it gave me gerd. What is the lesser evil here ? I'm 69, trying to stay active and capable of watching my grandkids.
I do take Vitamin D and have for years. Generally 5000 units. (Now with k- know better do better)
Any guidance is appreciated.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Very difficult. My bones had become so mushy (not a technical term) that I felt it was time for drugs.
I did six months of Forteo, six months of Tymlos, 12 months of Evenity, and had Reclast infusion in June 2024.
Every one of these drugs improved my bone health. Of course, I don’t know about the Reclast yet.
I have been very fortunate in that I had no side effects to speak of. Sometimes I wonder about this as I have plenty of aches and pains, fibromyalgia, a recent bradycardia episode, gerd, other unidentified symptoms- so maybe I am having side effects.
Prior to first going on the drugs, I was exercising snd supplementing like crazy, but bones just continued to crumble. Now, I feel like I can safely hike around on uneven ground and I don’t fear a fall so much.
Still, this is a difficult decision.
Of course. Your endo / rheum will know better, but this is my approach so far. I’m 64 and just went from penia to porosis. I know my genes will not help me here as my mom died of complications from her many fractures, so I wanted to be a bit more aggressive. My endo and I discussed the options and ended up with 2 yrs on Prolia, followed by 3-4 yrs on alondrate to hold Prolia’s gains. And then a drug holiday. 1 year in, no side effects, and fingers crossed that Prolia is doing its job. You will find all sorts of opinions and experiences here; good luck finding a thoughtful and experienced dr to help you with yours.
I am interested in how you are dealing with your fibromyalgia, which I have along with osteoporosis. Due to my fibro pain and insomia from it, I find it difficult to do the exercises to help my osteoporosis. Are you taking any meds that help relieve your fibro pain? Thanks.
Check out GlotyB on YouTube. She has such incredible information after curing her osteoporosis !!
ripley,
I take Lyrica (pregabalin) for fibromyalgia. I’m always trying to get off of meds, so a couple of years ago I weaned myself off of it. Felt awful. Recently, I did that again. Felt awful again. So, it seems that it does do its job.
All my doctors just love Lyrica. 🤷♀️
What dose of Lyrica do you take a day? Did it relieve or eliminate the pain? Thanks.
People can increase their bone density through strength training, dietary choices, weight management, and other strategies Weightlifting and strength training can help promote new bone growth and maintain existing bone structure
Benefits of weight and strength training include:
increased bone mineral density
increased bone size
protection against bone loss
improved balance and coordination
increased muscle mass
Eat more vegetables-potatoes
green or red peppers,broccoli,
Brussels sprouts
Consume calcium throughout the day - milk, cheese, yogurt
some leafy greens, such as kale,
beans,sardines
Eat foods rich in vitamins D and K-Foods that contain vitamin K2 include:sauerkraut, cheese
natto a soybean product
Eat more protein
Avoid a low calorie diet
Eat foods rich in omega-3 fatty acids
Avoid smoking & heavy drinking
Hello @debbclay and welcome to Mayo Connect. I am sorry to hear about the osteonecrosis that developed. Are there any dental treatments that can repair this?
I'm also wondering if during the 13 years if treatment with the Prolia, If you had increase in your bone density in other places?
Yes, my bone density DID increase and in some areas the osteoperosis is now. osteopenia. The only treatment it seems, since all I have heard is that this is rare and no one knows for sure what to do except keep removing the dead bone through surgery of take Forteo ( Lilly drug) at $5,000 a month for 2 years with caustic side effects.
Ihave chosen to stimulate my parathyroid through nutrition and suppliments ....do I really want to trust another drug when this one killed the bone in my jaw? We shall see,
I am at a loss as to what to do next....I initially reacted poorly to Fosamax including swallowing problems and MD stopped it right away, then I moved to Reclast and 2 year scan showed significant bone loss, I then moved to Prolia and failed. Then moved to Evenity which I just completed in October the bone clinic in my health system is recommending Reclast next. I am struggling to get them to schedule a DEXA post Evenity even though it is recommended and my prior year DEXA interpretation recommends followup scan in one year.
I don't know if Evenity worked and I have serious concerns with starting a drug I already failed. On my last DEXA I was at -4.8. I already have 6 spinal fusions from T9 to L2 with stable fractures in T9, T8 and T7 that occurred post spinal fusion surgery.
Any ideas or anyone like me that has navigated this issue?